For the past four years, we have hosted a one-mile swim to raise funds for Charcot-Marie-Tooth (CMT) disorder, with which our daughter Julia is afflicted. On September 4th, Rachael will again be participating in the "Swim for the Cure." We are excited that she is being joined again in the swim by her sister Cathy Bailey, as well as many close friends of ours to form "TEAM JULIA '11." Last year's event had over 20 swimmers and we're confident that we'll surpass that number this year! We are excited that this year's swim will again take place at Lake Valhalla Club in Montville, NJ. Please go to www.lakevalhallaclub.com to find directions to the Lake or http://www.facebook.com/pages/TeamJulia10/114692531914190 to see the official TeamJulia Facebook page.
Since its inception, "TeamJulia" has raised in excess of $250,000 for the Charcot-Marie-Tooth Association (CMTA). The CMTA's mission is "To generate the resources to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie-Tooth." During the past two years, significant progress has been achieved! Under the CMTA's STAR (Strategy to Accelerate Research) Program, CMT experts have succeeded in producing two robust CMT1A cellular models that have been used to screen more than 350,000 potential drug candidates, resulting in the identification of 4 FDA-approved compounds that will be incorporated into advanced drug development programs. The CMTA is currently partnered with 2 global pharmaceutical companies and 2 biotechnology companies that are each contributing significant technologies and know-how towards the advancement of the STAR program.
Team Julia at Lake Valhalla in 2010
We continue to be amazed by Julia. Despite her limitations, she is an incredibly well-adjusted eleven-year-old girl. In December, she had her second successful tendon transfer and heel cord lengthening surgery (in the past three years). Julia still has a lot to deal with—walking limitations, hearing loss, constant foot pain, daytime orthotics and nighttime braces, yet she rarely complains and has an extremely positive outlook on life and her future. She swims regularly, and hopes to one day be part of the team that bears her name!
We hope to see you in Montville on September 4th. Come to cheer us on, meet the CMTA's staff, CEO, Board Members and other folks with CMT.
If you would like to support Team Julia '11, please use the button below to make your contribution.
Any and all support is greatly appreciated!!