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Scared Stiff

I wrote yesterday and told everyone that my husband was told he had CMT it has been going on for almost a year and his doctors have said that it was everything else in the world except for this disease he finally changed docs and was told he had this, last night was truly a horrible night, his pain was off the charts and his regular meds did nothing to ease it. Is there anything else that can help him? I cant stand to see him suffer it breaks my heart. he has always been my rock, the strong one and to see him going through this and feel helpless and not having any answers as to why this has happened to him is truly the hardest thing I have had to do, we have been through alot together but this is the hardest so far, I just need so help and have no ideal where to turn.