My name is Dianna Engman (balison) and I am currently 23 years old and I was told I had CMT last year. No one in my family has CMT nor has ever herd of it. I also had to have a doctor fly to South Dakota from NY just to diagnose me with CMT due to my neurologist could not figure out what was wrong with me.
I am now paring up with some locals what have CMT or a family member with CMT and trying to get some donations in order and the awareness of it out!
During me finding out I have CMT it has be hard and a long struggle! I do have one son he is 4 and does not show any signs of CMT. My recent husband and I have had long talks about if we want to try for another child and still have not make a yes or no answer.
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