It was 1976 when I was first diagnosed. I was told that I had a rare neuro muscular disease called Charcot Marie Tooth disease. So few doctors were familiar with CMT that I actually received a referral for a dentist when I told a local doctor of it.
I remember being a child and hearing about CMT on the annual MDA telethon with Jerry Lewis. I remember being at Loma Linda University and showing the students my feet hoping one of them might find the cure.
Now 30+ years later so much has changed. Now braces are high tech and hardly show. Articles about CMT are easy to find and a cure will be here soon.
So much in 30 years.
- UNDERSTANDING CMT
- RESOURCE CENTER
- ABOUT US