Saturday
Welcome Address
Sue Bruhn, PhD
IU Health CMT Clinic Team
Laurie Gutmann, MD
Meet the CMTA Center of Excellence team from Indiana University Health. CMT Clinic Director, Dr. Laurie Gutmann, leads this interactive Q&A panel discussion.
CMT & Exercise
Mary Schmidt, DO
Learn exercises you can do daily, and get tips from physical therapists experienced in CMT. Studies show exercise significantly benefits people with CMT, and this session is designed to get you started or build on your current practice.
Help for Today: Gadgets & Assistive Technology
Ashley McLeroy, MSME
This session focuses on the best gadgets, adaptive tools, and assistive technology devices that can make activities of daily living easier for people with CMT.
CMT Surgery Panel
Glenn Pfeffer, MD
Paul Talusan, MD
Tyler Gonzalez, MD, MBA
Renowned orthopedic surgeons discuss the best surgical options, practices, and outcomes for CMT ankle and foot reconstruction.
Bracing Session
Ken Cornell, CO
Led by Ken Cornell, this session focuses on bracing and AFOs for people with CMT. The panel discusses cutting-edge bracing options for drop-foot and balance issues.
Your Story, Your Mojo, Your Move
Jeana Sweeney
Jeana Sweeney, a person with CMT and parent of a child with CMT, tells her story and teaches you how to find yours to raise awareness and support for CMT.
Sunday
Keynote Address
Dustin Turner
Research Roundup: CMTA-STAR in Summary
Katherine Forsey, PhD
There is so much going on in CMT research and treatment development right now that we need a roundup to share it all with you. Learn more about CMTA research projects, funded by the CMT community.
Treatment Approaches for CMT
John Svaren, PhD
Jordan Verplank, PhD
Steve Scherer, MD
There are several different types of treatments in development for CMT. This session explains the different treatment approaches, and delves into the current treatments in development.
Stages of Drug Development
Sue Bruhn, PhD
This session focuses on the different phases of drug development from conception to bringing a drug to market, and how CMTA works with patients to accelerate progress toward treatments.
Clinical Trial Development in CMT
Joshua Burns, PhD
Dr. Joshua Burns summarizes the current research on measuring change over time in CMT patients, and the importance of studying different outcome measures, biomarkers, and natural history to accelerate the development of new treatments.
Exciting Progress in Clinical Trials for CMT
Joshua Burns, PhD
Daniel Brennan
Evan Bailey, MD
Michael Imperiale
2025 is a pivotal year for clinical trials in CMT, with five active trials in the US, and more on the horizon. Listen as CMTA-STAR Alliance Partners Novartis, NMD Pharma, Applied Therapeutics, and Actio Biosciences discuss clinical development for CMT.
Patients as Partners in Research
Katherine Forsey, PhD
CMT research and clinical trials cannot happen without you. In this session, learn how you can become a Patient as Partner in Research and participate in the critical work of furthering the development of treatments for CMT. Your voice shapes the future of CMT research.
CMTA Patient and Research Summit Photos
