Annual Reports, Finances and Policies

Charcot-Marie-Tooth Association’s mission is to support the development of new drugs to treat Charcot-Marie-Tooth disease (CMT), to improve the quality of life for people with CMT and ultimately, to find a cure. Financial and other information about our charity’s purpose, programs and activities can be obtained by contacting Jeana Sweeney, Chief Engagement and Gift Officer, PO Box 105 Glenolden, PA 19036 United States, +16104999264. If you are a resident of any of the following states, please review the relevant disclosure statement.

FLORIDA: A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE 1-800-HELP-FLA OR ONLINE AT www.fdacs.gov/ConsumerServices. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE. REGISTRATION #: CH18212

GEORGIA: The following information is available upon request: a full and fair description of the charitable program for which the solicitation campaign is being carried out and, if different, a full and fair description of the programs and activities of the charitable organization on whose behalf the solicitation is being carried out, and a financial statement or summary consistent with the financial statement required to be filed with the Secretary of State pursuant to Code Section 43-17-5.

MARYLAND: A copy of the current financial statement of Charcot-Marie-Tooth Association is available by writing to Charcot-Marie-Tooth Association at PO Box 105 Glenolden, PA 19036 United States, or by calling +18006062682. Documents and information submitted under the Maryland Solicitations Act are also available, for the cost of postage and copies, from the Maryland Secretary of State, State House, Annapolis, MD 21401, (410) 974-5534.

MICHIGAN: MICS No. 51452.

MISSISSIPPI: The official registration and financial information of Charcot-Marie-Tooth Association may be obtained from the Mississippi Secretary of State’s office by calling 1-888-236-6167. Registration by the Secretary of State does not imply endorsement by the Secretary of State.

NEVADA: The state of incorporation of Charcot-Marie-Tooth Association is Pennsylvania. Contributions may be tax deductible pursuant to the provisions of Section 170(c) of the Internal Revenue Code.

NEW JERSEY: INFORMATION FILED WITH THE ATTORNEY GENERAL CONCERNING THIS CHARITABLE SOLICITATION AND THE PERCENTAGE OF CONTRIBUTIONS RECEIVED BY THE CHARITY DURING THE LAST REPORTING PERIOD THAT WERE DEDICATED TO THE CHARITABLE PURPOSE MAY BE OBTAINED FROM THE ATTORNEY GENERAL OF THE STATE OF NEW JERSEY BY CALLING 973-504-6215 or 201-504-6215 AND IS AVAILABLE ON THE INTERNET AT https://njconsumeraffairs.nj.gov/public-charity-search-results REGISTRATION WITH THE ATTORNEY GENERAL DOES NOT IMPLY ENDORSEMENT.

NEW YORK: A copy of the latest annual report may be obtained, upon request, by writing to Charcot-Marie-Tooth Association at PO Box 105 Glenolden, PA 19036 United States, or from the New York State Attorney General’s Charities Bureau, Attn: FOIL Officer, Department of Law, 120 Broadway – 3rd Floor, New York, New York 10271, (212) 416-8401 or https://ag.ny.gov/resources/organizations/charities-nonprofits-fundraisers

NORTH CAROLINA: Financial information about this organization and a copy of its license are available from the State Solicitation Licensing Branch at 1-888-830-4989 (within North Carolina) or (919) 807-2214 (outside of North Carolina). The license is not an endorsement by the State.

OREGON: Charcot-Marie-Tooth Association registration in no way constitutes or implies any endorsement, sanction, or approval of a solicitation, its purposes, the manner in which it is conducted, or of Charcot-Marie-Tooth Association by the Attorney General or any other governmental agency or officer.

PENNSYLVANIA: The official registration and financial information of Charcot-Marie-Tooth Association may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999. Registration does not imply endorsement.

VIRGINIA: A financial statement is available from the State Office of Consumer Affairs in the Department of Agriculture and Consumer Services P.O. Box 1163, Richmond, VA 23218 upon request.

WASHINGTON: The registration required by the Charitable Solicitation Act is on file with the Washington Secretary of State. Information relating to the financial affairs of Charcot-Marie-Tooth Association is available by calling the Secretary of State at 360-725-0378 (the toll-free number for Washington residents is 800-332-4483).

WEST VIRGINIA: West Virginia residents may obtain a summary of the registration and financial documents from the Secretary of State, State Capitol, Charleston, West Virginia 25305. Registration does not imply endorsement.

WISCONSIN: A financial statement of Charcot-Marie-Tooth Association disclosing assets, liabilities, fund balances, revenue and expenses for the preceding fiscal year is available upon request.

CONTRIBUTIONS ARE DEDUCTIBLE FOR FEDERAL INCOME TAX PURPOSES IN ACCORDANCE WITH APPLICABLE LAW. REGISTRATION IN A STATE DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION OF CHARCOT-MARIE-TOOTH ASSOCIATION BY THE STATE.