CMT Awareness Archives

Walking With CMT: How Strength, Movement, and Sensation Work Together to Improve Stability

CMTA community members walking on a snowy path

For people living with CMT, changes in muscle strength, joint motion, and sensory feedback can make walking feel less stable over time.

Stranded Without Your Mobility Device? A Realistic Guide to Traveling with CMT

Here’s what to do when your mobility device doesn’t arrive with your flight.

Halfway Up the Stairs: How One Family Turned Heartbreak Into Hope

Violet with arms raised, standing next to a dark blue CMTA banner on the left and a green wall with red handwriting behind her, name Violet featured prominently

The idea to fundraise for CMTA didn’t start with a plan. It started with a...

Under the Microscope: Reproductive Choices in CMT

CMTA-STAR Under the Microscope graphic titled “Reproductive Choices in CMT,” presenting a patient-friendly overview of family planning options for people living with Charcot-Marie-Tooth disease.

For people living with Charcot-Marie-Tooth disease, decisions about family planning can raise complex and deeply personal questions. This Under the Microscope installment explores various reproductive options and family planning resources.

CMT Community Helps Achieve a Major Research Milestone with NMD Pharma

Patients as Partners in Research and NMD Pharma logos shown together, representing CMTA’s collaboration with NMD Pharma in advancing Charcot-Marie-Tooth (CMT) research through community participation.

What happens when the CMT community takes action and participates in CMT research? NMD Pharma answers the question.

Can We Fix the Code? A Look at Genetic Therapies for CMT

Can we fix the genes that cause CMT? CMTA’s Dr. Katherine Forsey breaks down the science behind genetic therapies and what’s heading toward clinical trials.

What 50 People Taught Us about CMT1E Progression and Genetics

Kailee Ward with glasses and a research badge holds a yellow crocheted figure with black stripes, CMTA STAR logos appear on the right side.

A new study, powered by the CMTA-INC Alliance, offers answers. By analyzing data from 50 people with PMP22 variants, researchers linked specific mutations to age of onset, symptom severity, and progression—laying the groundwork for better care and trial design.