CMTA has designated a new Center of Excellence at Virginia Commonwealth University, expanding access to specialty care for people living with CMT in Virginia and the surrounding region.
CMTA Adds Science Writer to Team
CMTA welcomed Kenneth Raymond to the team as a science writer, bringing a patient-centered perspective and a deep focus on CMT genetics and education. His work supports CMTA’s mission to provide clear, accurate information to the CMT community and to strengthen understanding of this complex disease.
Sperm Donor with Gene for Charcot-Marie-Tooth Disease Passes it on to Multiple Families
A sperm donor unknowingly carrying a gene associated with CMT passed the variant on to children in multiple families, prompting difficult conversations about genetic screening, disclosure, and informed consent. One family’s experience highlights the real-world impact of inherited disease and the need for greater awareness around genetic risk in assisted reproduction.
CMTA Kicks Off CMT Awareness Month 2022
CMTA kicks off CMT Awareness Month 2022 with a month-long series of educational and community-driven activities designed to increase understanding of CMT. The campaign highlights people living with CMT and encourages public participation through digital engagement and awareness efforts.
Alan Jackson shares his CMT story with the Today Show
This morning, country star Alan Jackson shared his journey with Charcot-Marie-Tooth disease on the Today...
