CMTA's Media Hub

CMTA’s Media Room Provides Press Contacts, Brand Assets, and Background Information for Media Professionals, Partners, and Others Seeking to Share Information About Charcot-Marie-Tooth Disease (CMT) and the Work of CMTA.

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For Inquiries:

When referencing Charcot-Marie-Tooth disease (CMT) or the Charcot-Marie-Tooth Association (CMTA) in media or educational materials, please use the following background information to support accuracy and consistency.

We recommend using “Charcot-Marie-Tooth disease (CMT)” and “Charcot-Marie-Tooth Association (CMTA)” on first reference, followed by “CMT” or “CMTA” in subsequent mentions. To help maintain consistency, we suggest avoiding phrases like “the CMTA” or “Charcot-Marie-Tooth (CMT) disease.” The word “disease” should remain lowercase, even when “CMT” is capitalized, and “Charcot-Marie-Tooth” should always be hyphenated

About Charcot-Marie-Tooth Disease

Named after the three doctors who first described it in 1886: Charcot, Marie, and Tooth, Charcot-Marie-Tooth disease (CMT) affects one in every 2,500 people. This rare disease has multiple subtypes, each with a lower prevalence. People with CMT experience progressive sensory loss, muscle weakness, and atrophy in the arms and legs, along with impaired balance, mobility, hand function, and more. There is currently no treatment or cure for this debilitating disease.

To learn more, visit What Is CMT?

About Charcot-Marie-Tooth Association

Charcot-Marie-Tooth Association (CMTA) is a community-led, community-driven 501(c)(3) nonprofit organization with a mission to support the development of new treatments for CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure. As the leading global philanthropic funder of CMT research, CMTA unites the community with clinicians and industry experts to accelerate the advancement of treatments, with investments of more than $33 million since 2008.

To learn more, visit About CMTA.

CMTA Logos and Brand Assets

Below are downloadable logo files for approved use in media, partnerships, and educational materials. Please follow the brief usage guidance listed for each version. For additional brand guidelines or custom asset requests, contact CMTA’s Head of Communications at kenny@cmtausa.org.

Download CMTA Logos

• CMTA Logo (Full Color, White Background): Ideal for print and web materials where a defined white field is needed for clarity or layout consistency.
• CMTA Logo (Single Color – Blue, White Background): Best for internal documents, formal reports, and situations where a clean, minimal look is preferred.
• CMTA Logo (Full Color, Transparent Background): Versatile for use across digital platforms, presentations, and co-branded graphics with flexible backgrounds. (Background added for previewing)
• CMTA Logo (Negative, Transparent Background): Designed for dark backgrounds, video overlays, and social graphics where the white logo provides strong contrast. (Background added for previewing)

Logo Usage Guidelines

The CMTA logo may be used in public-facing materials, presentations, and co-branded efforts that support accurate communication about Charcot-Marie-Tooth disease and CMTA’s work.

To help ensure clarity and brand consistency, we offer multiple versions of the CMTA primary logo. While we don’t prescribe specific use cases for each, here are a few general principles to guide your selection:

• Choose a version that ensures high contrast and clear legibility across print or digital backgrounds.
• Use the full-color or blue logos when working with light backgrounds or printed collateral.
• Use the white (negative) logo on dark backgrounds or video overlays where contrast is needed.
• Do not alter or distort the logo, including recoloring, cropping, or adding effects.
• For questions about logo use or to request custom formats, contact CMTA’s Head of Communications at kenny@cmtausa.org.

News and Announcements

For official announcements, visit our Press Room, where you’ll find CMTA press releases.

For community news, research highlights, and personal stories from across the CMT community, check out Simply CMT, CMTA’s official blog, where we cover the science, the people, and the momentum driving CMT.

Annual Reports, Finances, and Policies

CMTA maintains the highest standards of transparency and accountability. Charity Navigator has rated CMTA a four-star charity every year since 2019 for exceeding industry standards in performance and accountability. Ninety cents of every dollar spent goes directly to advancing research and improving the quality of life for people with CMT.

View and download CMTA annual reports, financial statements, and policies here.