CMTAM 2023 Toolkit

…social media cmtausa.org https://www.cmtausa.org/get-involved/cmt-awareness-month-2023/ https://rarediseases.org/rare-disease-day/get-involved/ https://rarediseases.org/rare-disease-day/get-involved/ Sample Posts This September, join me and other CMT community members as we navigate a world with CMT! Charcot- Marie-Tooth disease (CMT) is a…

Dear_Medical_Professional

…Chlorprothixene Cimetidine Clioquinil Clofibrate Cyclosporin A Enalapril Gluthethimide Lithium Phenelzine Propafenone Sulfonamides Sulphasalzine Dear Medical Professional: I have been diagnosed with Charcot-Marie-Tooth disorder, the most common inherited peripheral neuropathy, affecting…

Emotional Support Group (ESG) Meeting October 2024

10/05/2024 @ 7:00 pm – 8:00 pm – Please join us on October 5th at 7:00 p.m. Eastern Time for an Emotional Support Group meeting led by Cheyenne Alfino. The CMTA will host monthly ESG meetings (virtually) focused on mental health support and wellness for the CMT community. Registration will be limited in order to best support the purpose of the group. The […]

Compass: December Meeting

12/29/2024 @ 6:00 pm – 7:00 pm – Come join us for an evening of community, fun, and friendship on Sunday, December 29th from 6:00 p.m. to 7:00 p.m. COMPASS is the Young Adult Community for the CMTA. Come join us once a month to connect with others who get it! We have an amazing group of young adults who come together to […]

Balance ‎Walking Stick Exercises for CMT

The Balance Walking for CMT Video Series demonstrates how using balance walking poles or walking sticks for balance can dramatically increase the confidence, fitness and mobility of people living with…

Emotional Support Group (ESG) Meeting May 2024

05/22/2024 @ 7:00 pm – 8:00 pm – Please join us on May 22nd at 7:00 p.m. Eastern Time for an Emotional Support Group meeting led by Maddie Jarrett. The CMTA will host monthly ESG meetings (virtually) focused on mental health support and wellness for the CMT community. Registration will be limited in order to best support the purpose of the group. The […]

COMPASS Special Meeting and Happy Hour

11/04/2023 @ 5:00 pm – 8:30 pm – Join us on Saturday, November 4th at 5:00pm for a special meeting with Jonah Berger and Gilles Bouchard, Chairman of the CMTA Board of Directors to discuss the future of the young adult program within the CMTA! This meeting will take place at the Embassy Suites following the CMTA Patient & Research Summit. After the […]

CMTA Youth Outing

11/04/2023 @ 10:00 am – 4:00 pm – Join us on November 4th as we tour the city of Boston, have lunch together and check out the candy shop! This is an amazing way for youth with CMT to meet other youth and learn that they are not alone! It is a wonderful way to see old friends and make new ones. Youth […]

CMTA Lunch & Learn: End of the Year Fireside Chat and Q/A

12/20/2023 @ 12:00 pm – 1:00 pm – Please join us (via ZOOM) for our last “Lunch & Learn” Webinar of the year on Wednesday, December 20th at 12:00 p.m. Eastern Time for one hour where we will welcome special guests Sue Bruhn, PhD, the CMTA’s CEO, and Katherine Forsey, PhD, the CMTA’s Chief Research Officer. The purpose of this meeting is two-fold: […]

CMTA Lunch & Learn: CMT Gadgets and Assistive Technology

03/28/2024 @ 12:00 pm – 1:00 pm – Please join us on March 28th at 12:00 p.m. Eastern Time for the first Lunch & Learn education meeting of the year, when we will welcome Ashley McLeroy, MSME. Ashley is the Director of Alabama’s Assisted Technology Act Program, Rehabilitation Engineer, Assistive Technology Specialist, and Disability Advocate. She will be discussing the top-rated assistive technology […]