Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
Central Virginia CMTA Branch Family Day
06/22/2024 @ 10:00 am – 12:00 pm – Please join us (in person) for the Central Virginia CMTA Branch Family Day Picnic onĀ Saturday, June 22nd at 10:00 am EST. Our family day will be held at the Barboursville Community Park in scenic Barboursville, Va. Please remember to bring your own food, drinks, and utensils. Feel free to bring along lawn chairs, blankets, […]
Family Planning For CMT – Part 1
…question comes after the kids are already grown, in which case the answer is based on the type of CMT someone has. But in other cases, this question comes before…
CMTA Camp Footprint Has Gone Virtual for 2020
…is building, and the countdown has begun. While registration for Camp Footprint 2020 is full, we’re so excited to welcome you to join us next year! Learn more at www.cmtacamp.org….
Acceleron Announces Topline Results from the Phase 2 Trial of ACE-083 in Patients with Charcot-Marie-Tooth Disease
ACE-083 did not achieve statistically significant improvements in functional endpoints relative to placebo; Acceleron to discontinue development of ACE-083. CAMBRIDGE, Mass.–(BUSINESS WIRE)– Acceleron Pharma Inc. (NASDAQ:XLRN), a biopharmaceutical company dedicated…
CMTA Funds Cutting-Edge Gene Editing Studies for Type 2 CMT
…information in a Word document. Methods to modify DNA in the genome have been around for more than 30 years, but CRISPR technology has brought major improvements in the speed,…
Type 1 CMT Gene Therapy Project Now Underway
…their behalf. To learn more about the CMTA, please visit www.cmtausa.org. Media contacts: Mary Fiance Director, Public Relations and Communications, MDA (646) 992-2908 mfiance@mdausa.org Marcia Semmes Media Relations, CMTA marcia@cmtausa.org…
INC Research Study 6601
…and Take a questionnaire regarding your feelings about your health. For more information about this study and to see a list of participating CMTA Centers of Excellence, please visit www.rarediseasesnetwork.org/cms/inc/6601….
Type 1 CMT Gene Therapy Project Now Underway
…their behalf. To learn more about the CMTA, please visit www.cmtausa.org. Media contacts: Mary Fiance Director, Public Relations and Communications, MDA (646) 992-2908 mfiance@mdausa.org Marcia Semmes Media Relations, CMTA marcia@cmtausa.org…
Genetics and Inheritance
…affected and help them make decisions regarding family planning. Advice about genetic testing and genetic counseling can be found through the National Society of Genetic Counselors on the Internet at…
Find the Right Lab for Your Genetic Testing
…can help determine the best test and the best lab, can be found at www.nsgc.org. *Carly is a senior genetic counselor in the Neuromuscular Division at Stanford Health Care and…