Be the Breakthrough: Join Patients as Partners in Research
Patients as Partners in Research connects people with CMT to the studies that matter, ensuring research reflects the community’s needs. Progress depends on participation, and joining a clinical study is one of the most powerful ways you can shape the future of CMT care.
By joining Patients as Partners in Research, your voice and experience guide progress toward new treatments for CMT, and a better understanding of how the disease impacts those affected.
As a participant, you’ll:
- Be first to hear about clinical trials and studies
- Get invitations to surveys and focus groups that shape research
- Connect directly with CMTA-funded scientists and clinicians
Not every study will be the right fit. Even if you don’t qualify for one opportunity, your participation in Patients as Partners in Research ensures you’ll be notified about the next.
How to register
Step 1:
Complete this form to receive an invitation to Patients as Partners in Research.
Step 2:
After you register, you will receive an invite via email to create your Patients as Partners profile. Be sure to check your spam folder if your invitation hasn’t arrived.
Step 3:
Using the link in the invitation email, complete your profile in the Patients as Partners registry. You will now receive research opportunities relevant to you.
Register today! The future of CMT research starts with you.
