Be the Breakthrough: Join Patients as Partners in Research
Patients as Partners in Research connects people with CMT to relevant studies, ensuring research reflects the community’s needs.
By joining Patients as Partners in Research, your voice and experience will guide progress toward new CMT treatments and help us better understand how the disease affects those living with it.
As a participant, you’ll:
- Be first to hear about clinical trials and studies
- Get invitations to surveys and focus groups that shape research
- Connect directly with CMTA-funded scientists and clinicians
Not every study will be the right fit. Even if you don’t qualify for one opportunity, your participation in Patients as Partners in Research ensures you’ll be notified about the next.
Use the button below to begin your registration for Patients as Partners in Research.
After you register, you will receive an email invitation to create your Patients as Partners profile. Check your spam folder if you don’t receive it.
Register today! The future of CMT research starts with you.

