About this Study The purpose of the study is to better understand, through questionnaires and...
Understanding Hearing and Balance in CMT1A
CMT1A is best known for causing nerve damage, sensory changes and muscle weakness in the...
The Effects of Genetic Counseling on Life Outlook Attitudes and Family Planning in CMT Patients
Genetic counseling plays a vital role in the rare disease community and is making its...
Stanford Chronic Pain Study
A Stanford research team needs feedback from patient advisors to make their five-year study welcoming...
CMT-SORD: Share Your Story
CMT-SORD: What is Your Story? For many with CMT, the journey through diagnosis, acceptance, and...