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Profiles

Bethany Noelle Meloche

Bethany Meloche is the author of How Should A Body Be?, a coming-of-age story about growing up in Michigan, falling in love and learning to live with Charcot-Marie-Tooth disease. Bethany is a professional storyteller who speaks internationally on the topics of facing fears, having vision and embracing your differences. Her story has been featured in the Daily Cal, the Mercury News, Mountain View Voice, Lower Extremity Review, and Neurology Now.

Bethany worked for the Charcot-Marie-Tooth Association for five years in the roles of director of social media and director of digital strategy. She pioneered the growth of the CMTA’s online communities and remains a powerful patient advocate in her role on the Advisory Board. Raised in Ann Arbor, Bethany has a degree in nutritional science from the University of California, Berkeley, and currently lives in London, where she writes and goes for long walks with her husband.

CMTA Advisory Board Member Bethany Noelle Meloche