Clark Semmes

Diagnosed with CMT1B in 2014, Clark Semmes wasted no time plunging into fundraising and community development with the CMTA. Shortly after founding the Baltimore, MD CMTA Branch, Clark partnered with long-time Board Member Steve O’Donnell to transform the Swim for the Cure into the Oxford Biathlon. Now in its fourth year, the newly-renamed Funathlon brings the mid-Atlantic CMT community to the tiny town of Oxford, Maryland, for a day of fun, fellowship and delicious crab. In his spare time, Clark enjoys writing. He authored “The Tribe of the Thin Ankles,” a book about living with CMT, and is one of the contributors to the CMTA’s best-selling “101 Practical Tips for Dealing with CMT.”