Herbert Beron

When Herb’s daughter Julia was diagnosed with CMT 2E, he and his my wife decided they needed to become actively involved with the CMTA. In 2007, they organized their first charity swim event to raise funds for the CMTA. Now 15 years later, “TeamJulia” has raised well in excess of $1 million for the CMTA’s STAR research program.

Herb has sat on the Board of Directors since 2007 and served as Chairman from 2011-2015. He welcomes the opportunity to help the CMTA achieve even greater heights. Our organization has accomplished much in the past 15 years through dramatic expansion of the CMTA Branch network and awareness campaigns, and we’ve made tremendous progress in our research initiatives with the NIH and, most recently, with incredible gene therapy collaborations.

That being said, there is still much more work to do. Herb is hopeful that we can build on the momentum that we’ve generated and take the CMTA to an entirely new level. He looks forward to meeting leaders and members at meetings and patient/family conferences throughout the country and working closely with the Board and CEO to raise research dollars to further our goal of finding a cure!

Herb received a BBA in Finance from Emory University in 1986, and he is currently an executive director in the financial services industry at a major Wall Street firm. It is Herb’s heartfelt goal that the CMTA achieve its stated mission: “to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie Tooth.”