The CMTA Inherited Neuropathy Consortium Alliance (CMTA-INC) has enrolled its 10,000th patient, marking a major milestone in the search for treatments...
Your Braces Should Be Earning Their Keep: What a New Study Says About AFOs and CMT
In a new study, Dutch researchers found that AFOs can measurably improve how people with CMT walk, but it depends on how the braces are chosen and fitted.
FDA to Hold Patient Listening Session for CMT2C/TRPV4
This October, the FDA will host a Patient Listening Session for the CMT2C/TRPV4 community, organized by CMTA. During this event, the FDA will hear from people living with this form of CMT about their lives, their needs, and their hopes for new treatments.
Anni Albers: Pushing Boundaries in Art and in Life
Anni Albers was an artist. First a painter, then a weaver. Then a printmaker, when her hand tremors made weaving too difficult.
Lace Up Your Way: The Virtual Walk/Cycle 4 CMT Is Here
The Virtual Walk/Cycle 4 CMT is officially underway, and there's still plenty of time to be part of it.
A Backup Gene Offers a New Path to CMT2A Treatment
What if the answer to CMT2A is already in your cells? A new CMTA partnership is testing whether switching on a backup gene could protect nerves when MFN2 fails.
Don’t Deny the Diagnosis
Accepting a CMT diagnosis can be difficult, especially when family members struggle with it, too. One person with CMT shares how denial affected their family and why acceptance, support and practical tools can make life with CMT easier.
See an Orthotist
Seeing an orthotist can feel like a big step for someone with CMT, but the right orthotics can make walking easier, improve stability and help prevent falls and injuries. Orthotist Sean McKale, CPO, explains what to look for and why finding the right fit starts with communication.
When Should Treatment Begin in CMT1A and CMT1E?
What if the timing of treatment could change everything? CMTA is funding a new study to find the optimal window for treating CMT1A and CMT1E; and to discover how to tell if it's working.
Seven Reasons to Attend the CMTA Patient & Research Summit
Need a reason to go to the CMTA Patient & Research Summit in San Francisco...
