Ed was born and raised on the Jersey Shore and moved to sunny Florida in 1972. He has been married to his lovely wife Vicki for 40 years and has one son, Bryan, age 38. Ed found out he had CMT at an early age because both his mother and uncle had already been diagnosed with it. His sister, niece and son also have it. Ed worked as a technical product manager for SGS, the world's largest independent inspection, testing, verification and certification company, for 40 plus years and is currenlty retired. Ed believes is Adaptation - a word he has become very familiar with:. "As I grow older and my CMT progresses, I have realized that if I want to continue the life I enjoy I must be able to adapt to my ever changing condition. Being in a wheelchair and depending on others, I could very easily be in a constant state of depression. However, I view each day as a new challenge. What do I want and how can I do it. I have found ways to adapt, whether it be on the dance floor, at the bowling alley, or riding my motorcycle. My attitude has been positive and my bucket list is getting shorter. CMT = Courage, Motivation & Tenacity. I believe you have to have the courage, motivation and tenacity to keep moving forward and not let the challenges in life, including those of CMT, stop you from your passion."