Dear Members of the CMT Community,
The Charcot-Marie-Tooth Association (CMTA) continues to prioritize the well-being of the CMT community. Advocating for improved access to care as well as the acceleration of research, CMTA is working closely with our partners to ensure our community receives the highest quality of support.
CMTA is actively monitoring the latest news about disability rights and the rare disease community. In collaboration with our partner at The EveryLife Foundation for Rare Diseases, we encourage the #CMTAFamily to sign the National Rare Disease Community Petition before Thursday, February 27th at 5pm (ET).
Sign the petition: https://everylifefoundation.org/national-rare-disease-community-petition/
For the 3 million people living with CMT around the world, and the 30 million Americans living with one or more rare diseases, federal support for biomedical research and stability at national public health agencies are essential to advancing lifesaving programs and public health initiatives. Through CMTA’s Strategy To Accelerate Research (CMTA-STAR), we will continue leading the way for breakthroughs in CMT research by supporting the world’s best research programs. CMTA-STAR is fully funded by the community and receives no additional federal support.
In the battle against CMT, you’re never alone. At CMTA, Community Is Everything.
Sincerely,
Sue Bruhn
Chief Executive Officer
Charcot-Marie-Tooth Association
Published on: February 26, 2025