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CMT1A Ionis Press Release
…works closely with the clinical and research communities. For media inquiries, please contact: Melanie Otero JLM Communications melanie@jlmcommunications.net 305-321-6447 Frank Gaidjunas Director of Marketing and Communications Charcot-Marie-Tooth Association frank@cmtausa.org 224-374-6038…
Pregnancy
…here: http://www.ncbi.nlm.nih.gov/pubmed/22459654, and the full text may be purchased here: http://www.ejog.org/article/S0301-2115%2812%2900091-7/fulltext.] A recent publication (Awater et al. 2012) has suggested that pregnancy may be a risk for women with neuromuscular…
Exercise/Physical Therapy
Where can I find out more about exercise and physical therapy for CMT? The CMTA has an online series of articles and videos on exercise and CMT: https://www.cmtausa.org/living-with-cmt/managing-cmt/exercise/ Here are…
Children/School
…to be self-conscious about their appearance. But the medical problems are far more serious. Severe scoliosis can produce pain, arthritic symptoms and heart and lung complications resulting from compression of…
Iowa-COE-Clinic-Brochure_Feb2018
…about CMT: Inherited Neuropathies Consortium www.rarediseasesnetwork.org/cms/inc The Charcot-Marie Tooth Association Tel: 800-606-CMTA www.cmtusa.org Muscular Dystrophy Association Tel: 800-572-1717 www.mdausa.org The Foundation for Peripheral Neuropathy Tel: 877-883-9942 www.foundationforpn.org University of Iowa…
Iowa-COE-Clinic-Brochure_Feb2018
…about CMT: Inherited Neuropathies Consortium www.rarediseasesnetwork.org/cms/inc The Charcot-Marie Tooth Association Tel: 800-606-CMTA www.cmtusa.org Muscular Dystrophy Association Tel: 800-572-1717 www.mdausa.org The Foundation for Peripheral Neuropathy Tel: 877-883-9942 www.foundationforpn.org University of Iowa…
New Mobile App Simplifies Sign-Up for Patient Registry
…compatible with all mobile platforms. Clicking on it will take the user directly to the RDCRN Contact Registry login page. The Contact Registry login page can be accessed at: https://www.rarediseasesregistry.org/…
The New York Stem Cell Foundation and the CMTA Enter Collaboration to Advance Neuropathies Research
…501c3 dedicated to serving an international patient community that suffers from rare and disabling neuropathies of genetic origin (https://www.cmtausa.org). The Association directly engages its STAR scientific and clinical research network…
Genetic Testing
…consultation with your neurologist and a genetic counselor. To find a genetic counselor, visit www.nsgc.org, and click on “Find a Genetic Counselor.” Genetic testing for CMT can be very complicated,…