CMT Awareness Month 2022

…with the disease, raising awareness is imperative. The CMTA is a patient-led nonprofit that is aggressively searching out a treatment for CMT by putting together a group of top-flight researchers…

2021_Summer_CMTA_Report

www.cmtausa.org SUMMER 2021 CMTATHE REPORT Food Additive Treatment for 1X Managing CMT Symptoms with Nutrition An Old Man’s Journey with CMT7 14 21> > > “ N O M A…

The Spring 2023 CMTA Report

…of interest: New CMT1X Mouse Model Patients as Partners in Research Tour of Conklin Lab Life-Changing Pharnext Moves Px3003 Production to Us ASO Treatment for CMT1A Circumnavigating the Globe New…

Who Inspires You to Give?

…that seeing the CMTA’s research progress and knowing that she is leaving a legacy and contributing to a treatment/cure inspires her to give. Under the CMTA’s Strategy to Accelerate Research,…

The Summer 2021 CMTA Report

…Gray Celebrating Steve (and his 2 decades of fundraising) CMTA Awards Züchner $300,000 for Gene Discovery Work CMTA Awards $100,000 to Explore Potential 1X Treatment CMTA-STAR Awards $1.1 Million in…

The CMT&ME Study: What It’s Like to Live with CMT

…how treatment can improve patient quality of life and slow CMT progression. The study collects data directly from patients using a digital app, CMT&Me, which collects real-world data using “bring…