Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
Hereditary Sensory Neuropathy Serine trial (SENSE trial)
In December 2021, the Charcot-Marie-Tooth Association Strategy to Accelerate Research (CMTA-STAR) awarded Dr. Mary M. Reilly and her team at the UCL Queen Square Institute of Neurology in London $354,826…
The Fall 2020 CMTA Report
…issue is available now and full of information for you. Inside, we bring you coverage of CMT research projects with a special focus on CMT1A, stories and perspectives from people…
A Retrospective Study of Subjects with Mutations in the C12ORF65 Gene Causing Complex CMT Type 6
…carries out specialist research into neurodegenerative diseases at the University of Cambridge and Addenbrooke’s Hospital. As a participant in this study, you would be asked to take part in a…
Karen Brown, CMTAthlete
…real-life community of support and accountability, I created a Circle of Friends on the CMTA website and asked my friends and family to give to CMT research in support of…
Help the CMTA Develop Clinical Trials in a Dish
…they can become cells with specialized functions. Stem cells collected from CMT patients are an important tool for CMT research. They can be turned into neurons and glia, cell types…
Understanding CMT4J: A Natural History Study
The purpose of this study is to observe and understand the progression of CMT4J over time. By tracking the natural course of the disease, researchers aim to discover how CMT4J…
CMTA Appoints David Apple to Board of Directors
…for a cure and its Strategy to Accelerate Research (STAR) brings world-renowned CMT researchers together with pharmaceutical and biotechnology partners and patients to accelerate scientific breakthroughs. The CMTA also offers…
Stanford Chronic Pain Study
Stanford Chronic Pain Study A Stanford research team needs feedback from patient advisors to make their five-year study welcoming for all patients living with chronic pain. They are gathering a…
The CMT&ME Study: What It’s Like to Live with CMT
There’s been little research to date into how CMT affects the lives of patients. The French company Pharnext, CMT scientific experts, and international patient advocacy organizations (PAOs) have therefore partnered…
Genes, Genetics and Genealogy: Three Roadmaps for CMT
…Accelerate Research (STAR). Could our genealogy tell us even more? My mother had researched genealogy for her and my father’s families for years, but she wasn’t looking for hereditary diseases….