GAN Community Letter 31JAN2022 Final

…information as part of our commitment to ongoing, open communication with the GAN patient community. We recognize the need for clarity regarding information as it becomes publicly available. Therefore, we…

Walk4CMT_Day-of_Logistics

…with any hazards that exist and how inclement weather could affect the route. Once you have a safe route and have measured the length of it (you can use www.mapmyrun.com…

NeuroMeds

www.elsevier.com/locate/jns Journal of the Neurological Sc Medication-induced exacerbation of neuropathy in Charcot Marie Tooth Disease Louis H. Weimer a,*, David Podwall b a Department of Neurology, Columbia University College of…

Medication Study

…also reviewed data from the CMT North American Database,* a computerized registry of clinical details of CMT patients in the U.S. and Canada. The database provided 996 drug entries of…

What Is CMT_onepage

…is fully aware of your medical condition, and discuss any possible side effects they may have on CMT. Have a drug/medication question? Visit www.cmtausa.org/medquest or email asktheexpert@cmtausa.org. https://www.cmtausa.org/medicationlist https://www.cmtausa.org/medquest mailto:asktheexpert@cmtausa.org…

CMT-and-Genetic-Testing-Why-Is-It-Important

…company that performs fee-for-service commercial testing for CMT as well as many other genetic disorders. The agenda that I want to talk about is really kind of meant to be…

Box of Sunshine Surgery Guide

…Stay connected! Follow @cmtayouth on Instagram and Facebook Sign up for our Youth Database! Contact our National Youth Programs Manager, Jonah Berger, with any questions! Email: Jonah@cmtausa.org https://forms.office.com/pages/responsepage.aspx?id=ZLPxtbhUuE2M6AfVO69PZsNFdDIk_kRCsERV0uAIo6tUQzhWSVZBTzNXQzFZMzZFM0VKMjlQQkZOSi4u www.facebook.com/groups/CMTAYouth @cmtayouth…

What is CMT (Spanish)

…Enfocado en la Comunidad de CMTA en Facebook (https://www.facebook.com/groups/ CMTAespanol/). Conviértase en colaborador o recaudador de fondos (cmtausa.org/donate). Ya sea que haga una donación individual, se registre para una donación…

2014_Cedars-Sinai_PFC_Agenda

…in Menlo Park. When not work- ing with the CMT community, Bethany may be found feeding squirrels on the UC Berkeley campus, where she is completing a degree in Nutri-…

2014_Stanford_PFC_Agenda

…communications coordinator at the pediatric hospice, George Mark Children’s House. With a broad knowledge base in community resources, Ms. Fisher is dedicated to building relationships with community partners, patients and…