Voice_of_the_Patient_Report_8-19-2019

…health o Many patients use complementary methods such as exercise, swimming, acupuncture, meditation, and massage o Patients are very creative in finding adaptations to help with their daily lives and…

Ride a Bike

…riding a bike will be something you do for fun, not just to stay fit! [Check with your doctor before beginning any exercise program, and if you use clipless pedals,…

Foot and Hand Care

…stabilize drop foot is an effective procedure. Physical therapy is commonly prescribed to help develop a Home Exercise Program and speed up healing after surgery. CMTA Foot & Hand Care…

CMTA’s 40 Under 40

…translational treatment option for distinct CMT1 types and that physical exercise dampens neuroinflammation, mitigates neuropathy and improves clinical outcome in an animal model for CMT1X. Klein is currently focusing on…

CMT and Other Medical Conditions

…CMT cause difficulty losing weight? As far as we know, there is no direct link between CMT and inability to lose weight. However, lack of exercise and fatigue can cause…

Managing Neuropathic Pain

…exercise. Cognitive behavioral therapy is the best studied of these treatments. Similar to topicals, side effects are much less of an issue than for oral medications. Downsides include finding a…

Surgery/Fractures/Falls

…exercises usually offer little value due to the muscles’ inability to function from CMT. A knee brace can help, but they are bulky and cumbersome to wear especially if one…

Help for Parents

…child who has only recently been diagnosed, while others reach out with questions about school or exercise. Some are just seeking a little support. Wherever you are in your journey,…