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Branch Leader Guide
…we would love to hear from you. Please send thoughts and feedback to the CMTA’s Director of Community Outreach, Laurel Richardson – laurel@cmtausa.org. Open as HTML Flipbook Download as PDF…
The Spring 2022 CMTA Report
…out the issue, you’ll find a thorough explanation of the pulmonary complications of CMT, two tales of parenting with CMT and a review of “Walk a Mile in My Braces,”…
CMTA Patient Support Fund
CMTA Patient Support Fund Purpose of the Fund This Fund is to support CMT patients being evaluated by a Foot and Ankle surgeon and for CMT surgery at Cedars-Sinai Medical…
Sorbitol Dehydrogenase (SORD) Deficiency
What is SORD? Sorbitol dehydrogenase (SORD) Deficiency, or CMT-SORD, is a recently discovered type of Charcot-Marie-Tooth disease (CMT). Is SORD related to CMT? Many people living with SORD Deficiency currently…
CMTAM 2023 Toolkit
Feel free to tag CMTA in your posts using the profiles below: Facebook: @CMTAssociation Twitter, Instagram, and TikTok: @CMTAUSA LinkedIn: @CharcotMarieToothAssociation Hashtags: #CMTAM23, #CMTAUSA, #CMTASTAR, #SeeCMT, #NavigatingCMT CMTA has created…
Patients as Partners
…Genetics of Charcot Marie Tooth Disease CMT Research Study: Evaluation of Changes on Gait in Children and Youth with CMT The CMT&ME digital study: How CMT affects patients’ daily lives…
Muscular Dystrophy Association and Charcot-Marie-Tooth Association Announce Collaborative Non-Viral Gene Therapy Research Grant
…cases are attributed to mutations in just four genes: PMP22 (CMT1A), MPZ (CMT1B), GJB1 (CMT1X), and MFN2 (CMT2A). CMT can be inherited in several ways: autosomal dominant (through a faulty…
FallReportSpreads
…quality of life for those living with CMT. For more information about CMT Awareness Month 2023 and how to participate, visit the official CMTA website: https://www.cmtausa.org/get-involved/ cmt-awareness-month-2023/ THERE’S STILL TIME…
What_Is_CMT_4-2017
…Stay Connected Get CMTA eNews/Update your lists: www.cmtausa.org/enews CMTA on Facebook: www.facebook.com/groups/CMTAssociation En Espanol: www.facebook.com/groups/CMTAespanol For Parents: www.facebook.com/groups/CMTAParents For Youth: www.facebook.com/groups/CMTAYouth CMTAthletes: www.facebook.com/groups/cmtathletes Webinars: www.cmtausa.org/webinars Patient/Family Conferences: www.cmtausa.org/pfcs Become a…
What_Is_CMT_4-2017
…Stay Connected Get CMTA eNews/Update your lists: www.cmtausa.org/enews CMTA on Facebook: www.facebook.com/groups/CMTAssociation En Espanol: www.facebook.com/groups/CMTAespanol For Parents: www.facebook.com/groups/CMTAParents For Youth: www.facebook.com/groups/CMTAYouth CMTAthletes: www.facebook.com/groups/cmtathletes Webinars: www.cmtausa.org/webinars Patient/Family Conferences: www.cmtausa.org/pfcs Become a…