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Syracuse, NY CMTA Branch
…your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives,…
Newbury, NH CMTA Branch
…your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives,…
St. Louis, MO CMTA Branch Meeting (Virtual) with Guest Speaker
09/28/2023 @ 7:00 pm – 8:00 pm – Please join us (virtually) for the next meeting of the St. Louis Branch on Thursday, September 28th at 7:00 pm Central Time when we will welcome special guest speaker John Svaren, PhD. Dr. Svaren is a member of the CMTA STAR Advisory Board and will be sharing STAR research updates and information on how to […]
CMT Awareness Month 2022
…with the disease, raising awareness is imperative. The CMTA is a patient-led nonprofit that is aggressively searching out a treatment for CMT by putting together a group of top-flight researchers…
October 2023 Community Statement from Novartis
…with the Novartis CMT Development Team as its program progresses.” – Dr. Katherine Forsey, chief research officer at Charcot-Marie-Tooth Association. CMT Community Statement October 2023 Dear Charcot-Marie-Tooth disease (CMT) Community,…
Hereditary Neuropathy with Liability to Pressure Palsies
…HNPP being the most common kind. Having one copy of the PMP22 gene, instead of two copies, is the typical cause of HNPP. Research for Demyelinating Forms of CMT ⟶…
CMT 4 Me Podcast
…unite as a community. The CMT 4 Me podcast releases every third week of the month, and will cover research updates, fundraising, unique stories, interviews with the CMTA community, including…
CMTA_STAR_Advisory_Board_Confidentiality_COI_Policy1
…the CMTA has formulated a strategy for the acceleration of research known as STAR. The CMTA recognizes that the development of research and effective therapies requires collaboration with the public…
2014_Cedars-Sinai_PFC_Agenda
…Center in 2011 to found the Neuromuscular Medicine division, to develop active programs in neuromuscular disease research which include a multidisciplinary CMT clinic, and a research laboratory focused on the…
CMTA_2019_Audited_Financial_Statements
…to Accelerate Research (STAR) initiative $1,120,754 $ 760,129 $ (890,551) $ 990,332 Research and diagnostic improvement – 2,093,099 – 2,093,099 $1,120,754 $ 2,853,228 $ (890,551) $3,083,431 -9- CHARCOT-MARIE-TOOTH ASSOCIATION NOTES…