CMTA Policies

Thank you for your interest in the policies of the Charcot-Marie-Tooth Association. Please use any the links below to review a specific policy. CEO Compensation Policy CMTA Document Retention Policy…

CMTA STAR Advisory Board Confidentiality Policy

…strategy for the acceleration of research known as STAR. The CMTA recognizes that the development of research and effective therapies requires collaboration with the public and private, for-profit sectors. The…

CMTA_2011_Annual_Report

…research. Regarding research, you will see on the pages summarizing our STAR initiative that the CMTA has made significant progress in realizing our mission of finding a first treatment for…

MyChildHasCMT

…Accelerate Research (STAR) as a three-step strategic research program to maximize breakthroughs in genetics and dramatically speed up the pace of CMT research. The goals of STAR were ambitious, but…

CMT_Survivors_Guide

…and research. Together, we have dramatically increased the pace of CMT research and gained international recognition as a model for patient-led research; STAR is getting noticed, supported, and praised worldwide….

The 2020 Spring CMTA Report

…you’ll find helpful stories on tendon transfers, HNPP and nerve conduction studies, as well as hopeful news on recently funded research projects. A World Turned Upside Down: A Message from…

Finding Your CMT Gene

…diseases are within sight. For example, gene therapy is on the horizon and has actually been successfully used for other diseases such as Spinal Muscular Atrophy. Researchers in Dr. Stephan…

Antelope Valley, CA CMTA Branch

…in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising…

COMPASS Special Meeting and Happy Hour

11/04/2023 @ 5:00 pm – 8:30 pm – Join us on Saturday, November 4th at 5:00pm for a special meeting with Jonah Berger and Gilles Bouchard, Chairman of the CMTA Board of Directors to discuss the future of the young adult program within the CMTA! This meeting will take place at the Embassy Suites following the CMTA Patient & Research Summit. After the […]

Southeastern, KY CMTA Branch

…your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives,…