Lia O’Sullivan: “I’m ok!”

…made easier by several fortunate events: The first was finding the Bay Area CMTA Branch, then led by Elizabeth Ouellette. Along with Lia, we met many others with CMT, and…

James Cuizon, Ironman

…online and found the CMTAthletes website (now at www.facebook.com/groups/cmtathletes). He was amazed to learn that people with CMT were competing in full-distance Ironman triathlons. He decided that if they could…

Managing Neuropathic Pain

Does CMT cause pain? Patients with CMT often have pain. Pain can be related to nerve injury, but other causes of pain include musculoskeletal causes such as joint injury. About…

NeuroMeds

…a CMTX Connexin-32 mutation. Each of the following subtypes had one reported individual: CMT1A (nonduplication), CMT1B (myelin protein zero (MPZ)), CMT2E (neurofilament light chain (NFL)), and CMT1D (early growth response-2…

Committee Resources

Committee Resources Our walk campaign brings local CMT communities together to work towards one common goal – raising money to find a cure for CMT. If you can create a…

Allard USA Orthotics & Braces

…committed relationship with Allard USA, the CMTA is grateful to provide opportunities to improve the quality of life for CMT patients across the country.” Studies have shown that early intervention…

Participants Needed for SORD Clinical Trial

…recessive CMT2. The new form of CMT (sometimes diagnosed as distal hereditary motor neuropathy) is caused by the SORD gene and appears to be the most common recessive CMT type….

Who Inspires You to Give?

Like many parents of children living with CMT, Tracy supports the CMTA because of the support and services they provide as her family navigates the complexities of the disease that…