Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
Physical Therapy and Exercise: Getting the Right Dose
…my husband and two of our children have CMT. During our experiences with CMT, we have encountered many people, including physicians and patients, who are unclear as to the role…
Volunteer Spotlight: Amy Keller
…covered with the CMTA STARS Amy has sold to raise funds for CMT research. One fateful day, Amy recalls, she decided she was tired of feeling down about her diagnosis…
Surgery
…should always weigh the realistic potential benefits against the problems posed by surgery. CMTA Patient Support Fund The CMTA has put together a fund to support CMT patients being evaluated…
Brochures & Guides
…CMT and Pain Management CMT-Associated Genes: The Definitive Guide CMT Guide for Schools What Is CMT? Card My Child Has CMT CMT Survivor’s Guide Neuropathic Pain in CMT Orthotic Management…
STAR_Webinar_Transcript
…involved! https://www.cmtausa.org Treatment Driven. Community Powered. Questions? Patient Registry https://www.rarediseasesnetwork.org/registry Clinical Trials https://clinicaltrials.gov CMTA https://www.cmtausa.org Annual Appeal – $150k match! www.cmtausa.org/35years Sign-up for e-news www.cmtausa.org/enews Follow us on Facebook www.facebook.com/CMTAssociation…
New Law Makes Flying Easier for People Living With Charcot-Marie-Tooth Disease
…for the CMT community. CMTA remains committed to continue working to create a world where air travel is easier and safer for all who have CMT. Published: May 16, 2024…
A First-Time Walk Leader Shares Her Experience
“My First Walk”: An Interview with Jess Diamond What inspired you to start a Walk 4 CMT? This year was my very first time hosting a Walk 4 CMT. I’d…
Initiation of Registrational Phase 2/3 Study of AT-007 in SORD Deficiency
…CMT-FOM domain sub-scales, CMT Health Index (CMT-HI) patient reported outcomes, fatigue assessment and muscle MRI. “The INSPIRE registrational trial in SORD Deficiency represents an important milestone for patients and is…
Estrategia para Avanzar en Estudios Científicos
…contacto para pacientes de CMT (CMT Registry). El Enfoque 1. Identificar los mejore investigadores del mundo para desarrollar y ejecutar los planes de acuerdo a esta estrategia. 2. Medir el…