Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
Physical Therapy and Exercise: Getting the Right Dose
…my husband and two of our children have CMT. During our experiences with CMT, we have encountered many people, including physicians and patients, who are unclear as to the role…
Participants Needed for SORD Clinical Trial
…recessive CMT2. The new form of CMT (sometimes diagnosed as distal hereditary motor neuropathy) is caused by the SORD gene and appears to be the most common recessive CMT type….
STAR_Webinar_Transcript
…involved! https://www.cmtausa.org Treatment Driven. Community Powered. Questions? Patient Registry https://www.rarediseasesnetwork.org/registry Clinical Trials https://clinicaltrials.gov CMTA https://www.cmtausa.org Annual Appeal – $150k match! www.cmtausa.org/35years Sign-up for e-news www.cmtausa.org/enews Follow us on Facebook www.facebook.com/CMTAssociation…
Chelsea Singer, Yoga Instructor
…until the age of 11, when her mother underwent foot surgery for her own CMT. Chelsea’s struggles with CMT were compounded by watching her mother succumb to a pain pill…
Estrategia para Avanzar en Estudios Científicos
…contacto para pacientes de CMT (CMT Registry). El Enfoque 1. Identificar los mejore investigadores del mundo para desarrollar y ejecutar los planes de acuerdo a esta estrategia. 2. Medir el…
How to Decide If Foot Surgery Is Right for You
Initiation of Registrational Phase 2/3 Study of AT-007 in SORD Deficiency
…CMT-FOM domain sub-scales, CMT Health Index (CMT-HI) patient reported outcomes, fatigue assessment and muscle MRI. “The INSPIRE registrational trial in SORD Deficiency represents an important milestone for patients and is…
New Mobile App Simplifies Sign-Up for Patient Registry
…Current open studies include: 6601: Natural History Evaluation of Charcot Marie Tooth Disease 6602: Genetics of CMT– Modifiers of CMT1A, New Causes of CMT2 6603: Development of CMT Peds Scale…
A First-Time Walk Leader Shares Her Experience
“My First Walk”: An Interview with Jess Diamond What inspired you to start a Walk 4 CMT? This year was my very first time hosting a Walk 4 CMT. I’d…
New Law Makes Flying Easier for People Living With Charcot-Marie-Tooth Disease
…for the CMT community. CMTA remains committed to continue working to create a world where air travel is easier and safer for all who have CMT. Published: May 16, 2024…