2015_Boston_PFC_Agenda

…have CMT1B. Ethan, 8, was also born with CMT1B. She is excited to be part of the CMTA community. Christopher Ouellette CMTA Board of Directors Chris is the Executive Vice…

2013_Orlando_PFC_Agenda

…does David provide services to people with CMT, he has CMT, as does his son Ethan. David’s maternal grandfather was the first known family member with CMT, and David assisted…

Breakthroughs_to_a_Cure

…Proved that drugs could be used to reduce inflammation that worsens CMT in a mouse with CMT1X. • Initiated a gene therapy approach to treat advanced symptoms of CMT1X. CMT2E…

2014_Cedars-Sinai_PFC_Agenda

…tional Science. Bethany has CMT1A and runs the blog BareYourBrace. com. Elizabeth Ouellette Member, CMTA Board of Directors When her son was diagnosed with CMT1A 13 years ago, Elizabeth made…

2014_Stanford_PFC_Agenda

…pm: Breakout Session One (Select 1, 2 or 3) Option 1: The Joys of CMT; Choosing Life on the Bright Side Jonah Berger, CMTA Advisory Board Option 2: A Stepping…

Director_Research_Position_Overview

…cure. To support the vision of the CMTA, “…a world without CMT”, the organization has created the Strategy to Accelerate Research (STAR) program to become a driving force behind CMT

35-Year-Timeline

…new animal models for CMT2E, CMT2A and CMT1B. 2016 The CMTA establishes Camp Footprint – the first camp in the US for children living with CMT. 2017 2018 The CMTA…

2021 990 PUBLIC

…54TH STREET – NEW YORK, NY 10019 20-2905531 501(C)(3) 0. 153,000. CMT RESEARCH OHIO STATE UNIVERSITY 1960 KENNY RD COLUMBUS, OH 43210 31-6025986 0. 128,018. CMT RESEARCH 11. 6. 10320727…

990_2022 PUBLIC

…ANDORRA, CMT RESEARCH 208,056.WIRE TRANSFER 0. EUROPE (INCLUDING ICELAND & GREENLAND) – ALBANIA, ANDORRA, CMT RESEARCH 80,000.WIRE TRANSFER 0. 5 14480821 793760 4321.0 2022.04010 CHARCOT-MARIE-TOOTH ASSOCIA 4321_0_1 52 232073 10-17-22…

Iowa-COE-Clinic-Brochure_Feb2018

…about CMT: Inherited Neuropathies Consortium www.rarediseasesnetwork.org/cms/inc The Charcot-Marie Tooth Association Tel: 800-606-CMTA www.cmtusa.org Muscular Dystrophy Association Tel: 800-572-1717 www.mdausa.org The Foundation for Peripheral Neuropathy Tel: 877-883-9942 www.foundationforpn.org University of Iowa…