CMTA Staff
…Partners in Research initiative, which connects the CMT community with opportunities to get involved in CMT research and increase the body of CMT knowledge. Katherine is a research biologist by…
Clinical Trials
…as Partners in Research Profile so that we can keep you informed about current research and opportunities to participate. Some examples of ways you may be able to get involved…
Patients as Partners
Patients as Partners The goal of Patients as Partners in Research is to advance the work of our Strategy to Accelerate Research (STAR) and enroll the patient community in the…
Toxic Medications List For Patients with Charcot-Marie-Tooth Disease
…shaping and delivering the CMTA’s research strategies. The CMTA currently has more than 50 active research projects, including sponsored research grants with academic labs and pre-clinical testing studies with biotech/pharma…
What is STAR?
…vision is poised to become reality as STAR pushes the Charcot-Marie-Tooth research forward at an ever-increasing speed. One of the first ways that the CMTA accelerates CMT research is by…
Three Major Patient Advocacy Groups Focused on CMT Research Collaborating on FDA “Voice of the Patient” Report
…condition. We thank the HNF for coordinating this important meeting and the MDA for their partnership. We believe this collaboration will help accelerate research and treatments for CMT patients worldwide….
Development of Advanced Research Diagnostic Capabilities for the CMT Community
…to address this issue by aggregating genetic data (panels, exomes, and genomes) from patients into a common database. This database is available to qualified researchers in the field and this…
CMT1A Research Breakthrough!
…hopeful breakthrough for medical researchers, healthcare professionals, patients, and families. Ionis researchers used their expertise as a world leader in developing antisense oligonucleotides, which precisely target the products of genes…
Bruce R Conklin, MD Joins the CMTA STAR Advisory Board
…Advisory Board (SAB). The SAB is comprised of world-leading experts who provide scientific input and evaluation of ongoing or proposed CMTA funded research projects and guide the CMTA’s research strategy….
Who Inspires You to Give?
…research service companies that are pursuing therapy development. STAR Research Agenda for Demyelinating Forms of CMT Download PDF STAR Research Agenda for Axonal Forms of CMT Download PDF “Hope is…