The Kansas City Area CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring individuals in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy, and current events and will include guest speakers. We love newcomers and hope you will join us at our next meeting!
Tammy is from Parsons, Kansas, located in the southeast corner of the state. She is the mother of Co-Leader Aron Taylor who was the first and only family member to be diagnosed with CMT in 1985. Tammy, a labor and delivery nurse, and her husband moved to Lawrence, Kansas, in 2015 to be near their children and grandchildren. They are in the process of building a house on their 80-acre farm, where they currently have two horses and plan to have other farm animals and grandkids soon.
Aron is from the small town of Parsons, Kansas, but has lived in the Kansas City area for the past 10 years. He was diagnosed with CMT in second grade, but was able to keep playing varsity baseball as a pitcher and infielder up until a foot injury sidelined him after his senior year of high school. Today, he continues to struggle with stairs and occasional falls, but feels fortunate that his CMT is still fairly mild. Aron's favorite hobby is music production, and he has produced and released several hip-hop albums over the past 15 years, including CMT-related songs such as "The Life You Love" and "Supergimpin." Aron married his best friend in 2015 and looks forward to having children.
