The Seattle, WA CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring individuals in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy, and current events and will include guest speakers. We love newcomers and hope you will join us at our next meeting!
Denise was born and raised in Lansing, Michigan, one of several family members with CMT. She earned a bachelor's degree in special education from Michigan State University, followed by a master's degree in school psychology and school administration from the same school. Denise participates in two book clubs and in Girl Scouts, and plans on putting her experience in fundraising to work as a co-leader for the Seattle CMTA Branch.
Emily grew up in Southern California and moved to Washington at age 14. Although she was diagnosed with CMT at age 10, doctors gave little information to Emily and her family about the disease, so she grew up thinking what she had was rare. Three decades later, Emily stumbled across the CMTA’s website and shortly thereafter met others with CMT for the first time in her life. Emily recently had a genetic test done and finally learned that her CMT type is 4C. When she is not working full time or hosting fundraisers for the CMTA, she likes going kayaking, going to the movies, taking road trips, and spending time with her friends and her daughter, Kalee.
