Let's get together! Everyone with CMT is welcome, along with your loved ones/friends.Visit us on Facebook:
The Los Angeles, CA CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring individuals in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy, and current events and will include guest speakers. We love newcomers and hope you will join us at our next meeting!
Alani was born and raised in rural northern Idaho and came to Los Angeles to attend Occidental College in 2000. She studied religion and culture, studied abroad in Nepal (a small country in the Himalayas located between India and China), and later earned a Master of Public Health degree at UCLA. She currently lives in LA with her husband and son, and works as a Coordinator for the California Department of Public Health's Prenatal Screening Program at Cedars-Sinai Medical Center. She enjoys traveling, reading, gardening, vegetarian cooking and continuing to learn about Nepali culture as well as topics related to global maternal health and human rights/social justice.
John was raised in Chino, California and was an automotive mechanic and photographer for 30 years. CMT became a factor in his life in his 40's, with symptoms progressing further. In 2015, John was diagnosed with CMT2A after genetic testing. He met other CMTers for the first time after attending the 2016 Walk 4 CMT event organized by the Los Angeles branch. This was an eye-opening experience for him! Since then, he has helped the CMTA by photographing nearby events and branch rneetings. John's hobbies include photography, genealogy and camping. In his position as co-leader, John is looking forward to meeting new people, spreading awareness and learning more about CMT!
Cheyenne is 28 years old from Los Angeles, California. She received her BA in Psychology from CSU Channel Islands, and MA in Clinical Psychology from Pepperdine University. She currently works as an ABA Therapist and manages her own business as a Marriage and Family Therapist specializing in Adults with Chronic Illness, ADHD, Anxiety, and/or Major Depressive Disorder. Throughout the last 10 years, Cheyenne has been dedicated to helping others to understand more about the physical and emotional aspects of CMT. She has been a professional guest speaker at CSU Channel Islands; provided advocacy and awareness about CMT; participated as a guest speaker for the Los Angeles Walk 4 CMT event, as well as a Madison WI branch meeting; volunteered at Camp Footprint, originally as a counselor and now as part of the Mental Health Staff; and is a co-leader for the Emotional Support Group through the CMTA. Currently, she enjoys playing high arch softball with her family and spends a majority of her free time with her service dog, Mamacita. For inquiries about Therapy or Mental Health Services visit CheyMTherapy.com or email at Cheymtherapy@gmail.com.
