The Maryland CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring individuals in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy, and current events and will include guest speakers. We love newcomers and hope you will join us at our next meeting!
Rebecca was diagnosed with a Spontaneous Mutation of CMT when she was 12 years old. At a young age she had balance issues and difficulty running. When she broke her ankle, at age 11, CMT came on quickly. The neuropathy impacted her ankles and muscles causing significant atrophy. As decades have passed the disease has progressed, but she manages through career, purpose, humor, exercise, good friends and very supportive family. Professionally, Rebecca is a Psychotherapist working with children, adolescents and adults that are seeking personal growth or treatment for a mental health disorder. Changing lives for the better and having a positive impact on others is her passion. Rebecca lives in Annapolis, MD with her husband and two teenage sons who keep her very active and constantly on the go! She enjoys spending time with her family and friends, boating on the Chesapeake Bay, traveling, exercising and yoga, good books, great movies, concerts, dining out, comedy shows, watching sports and more.
Kelsey was diagnosed with CMT 1A in 2019, a condition that runs in her family, as both her mother and aunt are also affected. She is passionate about staying active and considers the gym her happy place. A devoted Baltimore sports fan. Let's go O's! Rather than hiding her symptoms, she has embraced her diagnosis and is eager to connect with the CMT community, both locally in Baltimore and across the country. She is particularly focused on encouraging more young people to get involved and build a strong, supportive network.
As a mother and caregiver of a child with CMT, Sarah hopes to bring a different perspective to the Maryland CMTA branch. Seeing what her daughter has to go through is the driving force that keeps her going. Sarah would love to help others connect to feel not so alone on this never-ending journey of learning, experience, and this thing we call life.
