Tulsa, OK CMTA Branch

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Tulsa, OK CMTA Branch
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The Tulsa, OK CMTA Branch is for those who have Charcot-Marie-Tooth disease and their loved ones. We welcome you to join this vibrant group of active and caring individuals in your area to share resources, ideas, CMT-related information, and personal experiences and to, ultimately, build life-long friendships and support. Meetings will focus on CMT education, awareness, research updates, fundraising initiatives, advocacy, and current events and will include guest speakers. We love newcomers and hope you will join us at our next meeting!

Tulsa
Oklahoma
Lonna Henry

Branch Leader Picture
Hello! I'm Lonna, I am a boy mom of two and married to my best friend, Rodney. I wasn't diagnosed with CMT1A until I was 27, but I have had symptoms since I could walk. I have multiple genetic disorders on top of CMT, Including Hypermobility Ehlers Danlos Syndrome and a Rare Mitochondrial Disease. I spend a lot of my time bringing awareness, educating others, and sharing my journey online. I hope to be able to reach more people and continue to educate others about Charcot Marie Tooth through the CMTA.
918-961-1418
tulsacmtabranch@cmtausa.org
Kurt Connelly

Branch Co-Leader Picture
My name is Kurt Connelly. I was officially diagnosed with CMT1A in 2018, and with my son, am part of four known generations of CMT. I have a wonderful wife and three kids, who keep me moving in all different directions. I am a geek at heart and love having little DIY projects to keep me busy. I am excited to be the Co-leader of the Tulsa branch and look forward to sharing encouragement, resources, and information. Whatever you’re doing today, do it with the confidence of a four-year-old in a Batman t-shirt.
tulsacmtabranch@cmtausa.org
  • Tulsa, OK CMTA Branch

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