Category
Clinical Director(s)
John Day, MD, PhD, and Ana Tesi Rocha, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthopedic Surgery, Speech/Language Pathology
Contact Person
Jessica Guzman, Nurse Coordinator
Contact Phone
650-723-0993
730 Welch Rd 2nd Fl
Palo Alto, California 94304
Palo Alto, California 94304
Category
Clinical Director(s)
John Day, MD, PhD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Physical Therapy, Speech/Language Pathology, Social Work/Counseling
Contact Phone
650-723-6469
Contact Email
Website Address
Stanford Neuroscience Health Center
213 Quarry Rd
Palo Alto, California 94304
Palo Alto, California 94304
Category
State College, Pennsylvania 16801
Virtual Meetings - All are welcome
Lois Martin
Category
Specialty
Neurology
Institution
University of Miami
Department
Neurology
Contact Phone
305-243-4000
Website Address
1501 NW 10 Ave
Room 523 Biomedical Research Bldg
Miami, Florida 33136
Room 523 Biomedical Research Bldg
Miami, Florida 33136
Category
Specialty
Orthopedic Surgery
Sub-Specialty
Pediatric
Institution
Upstate Medical University
Department
Orthopedic Surgery
Office Fax
315-464-6470
Contact Phone
315-464-4472
750 E Adams St
Syracuse, New York 13202
Syracuse, New York 13202
Category
Specialty
Orthopedic Surgery
Institution
Orthopaedic Specialists-UPMC
Department
Department of Orthopaedic Surgery
Contact Phone
877-471-0935
Website Address
9104 Babcock Blvd Ste 5113
Pittsburgh, Pennsylvania 15237
Pittsburgh, Pennsylvania 15237
Category
Specialty
Orthopedic Surgery
Sub-Specialty
Foot & Ankle
Institution
GBMC Health Partners - Orthopaedics
Contact Phone
443-849-3838
Website Address
6565 N Charles St
Baltimore, Maryland 21204
Baltimore, Maryland 21204
Category
Specialty
Orthotics/Prosthetics
Institution
Valley Prosthetics and Orthotics Inc.
Office Fax
610-770-1522
Contact Phone
610-770-1515
Website Address
1251 S Cedarcrest Blvd Ste 105
Allentown, Pennsylvania 18103
Allentown, Pennsylvania 18103
Category
Institution
Central Indiana Orthopedics
Office Fax
765-284-4266
Contact Phone
765-284-7738
Website Address
3600 W Bethel Ave
Muncie, Indiana 47304
Muncie, Indiana 47304
Category
Specialty
Orthopedic Surgery
Institution
Lucile Packard Children’s Hospital
Department
Dept. of Orthopaedic Surgery
Adult/Pediatric
Pediatric
Office Fax
650-497-8891
Contact Phone
844-416-7846
Website Address
730 Welch Rd 1st Fl
Palo Alto, California 94304
Palo Alto, California 94304
Category
Specialty
Neurology
Institution
University of Colorado Health Sciences Center
Department
Neurology
Contact Phone
720-848-2080
Website Address
1635 Aurora Ct
Aurora, Colorado 80262
Aurora, Colorado 80262
Category
Specialty
Neurology
Institution
University of Pennsylvania Medical Center
Department
Neurology
Office Fax
215-573-3029
Contact Phone
215-349-5313
3400 Spruce St
Philadelphia, Pennsylvania 19014
Philadelphia, Pennsylvania 19014
Category
Specialty
Physical Therapy
Sub-Specialty
Pediatric
Institution
Children's Therapy Center
Contact Phone
703-569-7500
Website Address
6225 Brandon Ave Ste 130
Springfield, Virginia 22150
Springfield, Virginia 22150
Category
Specialty
Neurology
Sub-Specialty
Pediatric
Institution
Children's Medical Center
Department
Pediatric Neurology
Office Fax
713-798-5073
Contact Phone
214-456-2768
2350 N Stemmons Fwy # F5400
Dallas, Texas 75207
Dallas, Texas 75207
Category
100 Trolley Barn Ln
North Syracuse, New York 13212
North Syracuse, New York 13212
The Northern Onondaga Public Library
Michael Casey
Category
Sub-Specialty
Foot and Ankle
Institution
Rebound Orthopedics
Office Fax
360-254-6161
Contact Phone
360-254-6161
Website Address
200 NE Mother Joseph Pl Ste 110
Vancouver, Washington 98664
Vancouver, Washington 98664
Category
Specialty
Neurology
Institution
UC Irvine MDA ALS Neuromuscular Clinic
Department
Neurology
Office Fax
714-456-5997
Contact Phone
714-456-2332
Website Address
200 S Manchester Ave Ste 110
Orange, California 92868
Orange, California 92868
Category
9951 Balm Riverview Rd.
Riverview, Florida 33569
Riverview, Florida 33569
Riverview Public Library
Ed Linde
Category
Specialty
Neurology
Sub-Specialty
Neuromuscular Medicine
Institution
Northwestern University School of Medicine
Department
Neurology
Contact Phone
312-695-7950
Lavin Family Pavilion
259 E Erie St
Chicago, Illinois 60611
Chicago, Illinois 60611
Category
Clinical Director(s)
Sabrina Yum, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Physiatry
Contact Person
Hannah Borger (clinic coordinator)
Contact Phone
215-590-1719
Contact Email
Website Address
Wood Building, 6th Fl
3401 Civic Center Blvd
Philadelphia, Pennsylvania 19014
Philadelphia, Pennsylvania 19014
Category
Clinical Director(s)
Steven Scherer, MD, PhD and Chafic Karam, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Physical Therapy
Contact Person
Shana Millner
Contact Phone
215-662-3606
Contact Email
Website Address
Perelman Center for Advanced Medicine, South Pavilion, 2nd Fl
3400 Civic Center Blvd
Philadelphia, Pennsylvania 19014
Philadelphia, Pennsylvania 19014
Category
Institution
The Johns Hopkins CMT Center
Clinical Director(s)
Charlotte Sumner, MD and Bipasha Mukherjee-Clavin, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
EMG/Nerve Conduction Studies, Neurology, Occupational Therapy, Orthotics/Prosthetics, Pediatrics, Physical Therapy, Clinical Research
Services Provided by Referral/Appointment
Genetic Counseling, Pulmonology
Contact Person
Theresa Cox
Contact Phone
(Adult) 410-614-1196; (Pediatric) 410-955-4259
Contact Email
601 North Caroline Street
5th floor
Baltimore, Maryland 21287
5th floor
Baltimore, Maryland 21287
Category
Specialty
Neurology
Sub-Specialty
Pediatric
Institution
Johns Hopkins University & School of Medicine
Department
Pediatric Neurology
Office Fax
410-614-2297
Contact Phone
410-955-4259
Website Address
600 N Wolfe St
Baltimore, Maryland 21287
Baltimore, Maryland 21287
Category
Specialty
Physical Therapy
Institution
Physical Therapy Associates of Schenectady
Office Fax
518-399-6864
Contact Phone
518-399-6861
42 Saratoga Rd
Scotia, New York 12302
Scotia, New York 12302
Category
Specialty
Neurology
Institution
Brigham and Women's
Department
Neurology
Contact Phone
617-732-8046
60 Fenwood Road
Boston, Massachusetts 92115
Boston, Massachusetts 92115
Category
Specialty
Orthopedic Foot and Ankle Surgery
Institution
University of South Carolina/ Prisma Health
Clinical Director(s)
Dr. Tyler Gonzalez
Adult/Pediatric
Adult and Pediatric
Office Fax
803-296-9804
Contact Person
Tiffany Swygert
Contact Phone
803-296-9618
Contact Email
Website Address
University of South Carolina/ Prisma Health
104 Saluda Pointe Dr.
Lexington, South Carolina 29072
Lexington, South Carolina 29072
In person and telehealth appointments available
Category
Department
UNC Neurology Clinic
Clinical Director(s)
Rebecca Traub, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Orthopedic Surgery, Physiatry, Physical Therapy, Podiatry
Contact Phone
984-974-4401
Website Address
300 Meadowmont Circle, Suite 202
Chapel Hill, North Carolina 27515
Chapel Hill, North Carolina 27515
Category
Institution
University of California, San Francisco
Clinical Director(s)
Mark Terrelonge, MD
Services Provided at Clinic
Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy, Podiatry
Contact Phone
415-353-2273
Website Address
400 Parnassus Avenue
8th Floor
San Francisco, California 94143
8th Floor
San Francisco, California 94143
Category
Clinical Director(s)
Alex Fay, MD, PhD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthopedic Surgery, Physiatry, Physical Therapy, Social Work/Counseling
Contact Phone
415-353-7596
1825 4th St, 6th Fl Ste A
San Francisco, California 91458
San Francisco, California 91458
Category
Department
Department of Neurology
Clinical Director(s)
Vera Fridman, MD
Adult/Pediatric
Adult
Services Provided at Clinic
EMG/Nerve Conduction Studies, Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Physical Therapy, Pulmonology, Social Work/Counseling, Clinical Research
Contact Phone
720-848-2028
Website Address
Anschutz Outpatient Pavilion
1635 Aurora Ct Ste 4200
Aurora, Colorado 80045
Aurora, Colorado 80045
Category
Clinical Director(s)
James Wymer, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Occupational Therapy, Orthotics/Prosthetics, Pain Management, Podiatry, Respiratory Therapy, Social Work/Counseling
Contact Phone
352-294-5400
Norman Fixel Institute for Neurological Diseases
3009 SW Williston Rd
Gainesville, Florida 32608
Gainesville, Florida 32608
Category
Department
Department of Neurology
Clinical Director(s)
Charles K. Abrams, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Physical Therapy, Speech/Language Pathology, Social Work/Counseling
Services Provided by Referral/Appointment
Orthopedic Surgery, Physiatry, Podiatry
Contact Phone
312-996-4780
Website Address
1801 W Taylor St Ste 4 E
Chicago, Illinois 60612
Chicago, Illinois 60612
Category
Clinical Director(s)
Michael E. Shy, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthopedic Surgery, Pediatrics, Physical Therapy
Contact Phone
319-384-6362
Contact Email
Website Address
Boyd Tower, 2nd Fl
200 Hawkins Dr
Iowa City, Iowa 52242
Iowa City, Iowa 52242
Category
Clinical Director(s)
Zeng Y. Wang, MD, PhD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Social Work/Counseling
Services Provided by Referral/Appointment
Orthotics/Prosthetics, Physical Therapy, Podiatry
Contact Person
Albertine Fabi
Contact Phone
502-588-4800
Contact Email
Website Address
401 E Chestnut St Ste 510
Louisville, Kentucky 40202
Louisville, Kentucky 40202
Category
Clinical Director(s)
Mario Saporta, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Orthotics/Prosthetics, Physical Therapy, Social Work/Counseling
Contact Phone
305-243-9173
Professional Arts Center
1150 NW 14th St, Ste 609
Miami, Florida 33136
Miami, Florida 33136
Category
Institution
University of Michigan
Clinical Director(s)
Gary Gallagher, MD and Brett McCray, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Orthotics/Prosthetics, Physiatry
Contact Phone
734-936-9020
Website Address
MDA and CMT Clinic
2850 South Industrial Highway
Suite 400
Ann Arbor, Michigan 48104
Suite 400
Ann Arbor, Michigan 48104
Category
Clinical Director(s)
David Walk, MD
Adult/Pediatric
Adult
Services Provided at Clinic
EMG/Nerve Conduction Studies, Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Nutrition, Physiatry, Podiatry, Social Work/Counseling
Contact Phone
763-898-1000
Contact Email
Neurology Clinic at Fairview Maple Grove Medical Center
14500 99th Ave N
Maple Grove, Minnesota 55369
Maple Grove, Minnesota 55369
Category
Department
Children's Genetics
Contact Phone
601-984-1900
Website Address
2500 N State St
Jackson, Mississippi 39216
Jackson, Mississippi 39216
Category
Department
Department of Neurology
Clinical Director(s)
Dr. Vovanti Jones
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry
Contact Phone
573-882-1515
1020 Hitt St
Columbia, Missouri 65212
Columbia, Missouri 65212
Category
Clinical Director(s)
David Herrmann, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Social Work/Counseling
Contact Phone
585-275-2559
Contact Email
Website Address
601 Elmwood Ave
Box 673
Rochester, New York 14642
Box 673
Rochester, New York 14642
Notes
Request for genetic counseling must be made prior to visit. Orthotics/prosthetics not at clinic; separate appointment is required.
Category
Clinical Director(s)
Russell Butterfield, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Physiatry, Pulmonology, Respiratory Therapy
Contact Phone
801-585-7575
175 N Medical Dr East
Salt Lake City, Utah 84132
Salt Lake City, Utah 84132
Category
Specialty
Neurology
Institution
University of Colorado Hospital
Department
Neurology
Office Fax
720-848-2106
Contact Phone
303-724-2188
Website Address
Anschutz Outpatient Pavilion
1635 Aurora Ct Ste 4200
Aurora, Massachusetts 80045
Aurora, Massachusetts 80045
Category
Specialty
Neurology
Institution
Dartmouth-Hitchcock Medical Center
Department
Neurology
Office Fax
603-650-6233
Contact Phone
603-650-8589
One Medical Center Dr
Lebanon, New Hampshire 03756
Lebanon, New Hampshire 03756
Category
Institution
UCI Medical Center
Department
Pediatrics
Office Fax
714-456-5330
Contact Phone
714-456-5791
101 The City Dr S
ZC 4482
Orange, California 92868
ZC 4482
Orange, California 92868
Category
Clinical Director(s)
Stefanie Geisler, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
EMG/Nerve Conduction Studies, Neurology, Orthotics/Prosthetics, Physical Therapy, Social Work/Counseling
Contact Phone
314-362-6981
Website Address
660 S Euclid Ave
St. Louis, Missouri 63110
St. Louis, Missouri 63110
Category
Maryland
Virtual Meetings and In Person Meetings - All are welcome
Steve Weiss
Category
95 Bradhurst Ave
Valhalla, New York 10595
Valhalla, New York 10595
Blythedale Children's Hospital
Beverly Wurzel
Category
Specialty
Neurology
Sub-Specialty
Pediatric
Institution
Vanderbilt Childrens Neurology
Department
Pediatric Neurology
Contact Phone
615-936-5536
Website Address
2200 Childrens Way 9th Floor
Nashville, Tennessee 37232
Nashville, Tennessee 37232