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Stanford Childrens Health

Stanford Childrens Health
Category
Stanford Childrens Health
Clinical Director(s)
John Day, MD, PhD, and Ana Tesi Rocha, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthopedic Surgery, Speech/Language Pathology
Contact Person
Jessica Guzman, Nurse Coordinator
Contact Phone
650-723-0993
Website Address
http://www.stanfordchildrens.org/en/service/neuromuscular-disorders
730 Welch Rd 2nd Fl
Palo Alto, California 94304

Stanford Neuromuscular Program

Stanford Neuromuscular Program
Category
Stanford Neuromuscular Program
Clinical Director(s)
John Day, MD, PhD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Physical Therapy, Speech/Language Pathology, Social Work/Counseling
Contact Phone
650-723-6469
Contact Email
jnfisher@stanford.edu
Website Address
https://stanfordhealthcare.org/medical-conditions/brain-and-nerves/charcot-marie-tooth-disease.html
Stanford Neuroscience Health Center
213 Quarry Rd
Palo Alto, California 94304

State College CMTA Branch

State College CMTA Branch
Category
State College CMTA Branch
State College, Pennsylvania 16801
Virtual Meetings - All are welcome
Lois Martin

Stephan Zuchner, MD

Stephan Zuchner, MD
Category
Stephan Zuchner, MD
Specialty
Neurology
Institution
University of Miami
Department
Neurology
Contact Phone
305-243-4000
Website Address
http://neurology.med.miami.edu
1501 NW 10 Ave
Room 523 Biomedical Research Bldg
Miami, Florida 33136

Stephen A. Albanese, MD

Stephen A. Albanese, MD
Category
Stephen A. Albanese, MD
Specialty
Orthopedic Surgery
Sub-Specialty
Pediatric
Institution
Upstate Medical University
Department
Orthopedic Surgery
Office Fax
315-464-6470
Contact Phone
315-464-4472
Website Address
https://www.upstateorthopedics.com/our-providers/dr-stephen-albanese/
750 E Adams St
Syracuse, New York 13202

Stephen F. Conti, MD

Stephen F. Conti, MD
Category
Stephen F. Conti, MD
Specialty
Orthopedic Surgery
Institution
Orthopaedic Specialists-UPMC
Department
Department of Orthopaedic Surgery
Contact Phone
877-471-0935
Website Address
http://findadoc.upmc.com/PhysicianBioQuery.aspx?EPCDID=587
9104 Babcock Blvd Ste 5113
Pittsburgh, Pennsylvania 15237

Steven A. Kulik, MD

Steven A. Kulik, MD
Category
Steven A. Kulik, MD
Specialty
Orthopedic Surgery
Sub-Specialty
Foot & Ankle
Institution
GBMC Health Partners - Orthopaedics
Contact Phone
443-849-3838
Website Address
https://www.footanklemd.com/
6565 N Charles St
Baltimore, Maryland 21204

Steven Chu, CPO

Steven Chu, CPO
Category
Steven Chu, CPO
Specialty
Orthotics/Prosthetics
Institution
Valley Prosthetics and Orthotics Inc.
Office Fax
610-770-1522
Contact Phone
610-770-1515
Website Address
www.valleypo.com
1251 S Cedarcrest Blvd Ste 105
Allentown, Pennsylvania 18103

Steven Herbst, MD

Steven Herbst, MD
Category
Steven Herbst, MD
Institution
Central Indiana Orthopedics
Office Fax
765-284-4266
Contact Phone
765-284-7738
Website Address
https://ciocenter.com/physicians/steven-a-herbst-md/?utm_source=GMBSocialClimb&utm_medium=StevenA.Herbst,MD
3600 W Bethel Ave
Muncie, Indiana 47304

Steven L. Frick, MD

Steven L. Frick, MD
Category
Steven L. Frick, MD
Specialty
Orthopedic Surgery
Institution
Lucile Packard Children’s Hospital
Department
Dept. of Orthopaedic Surgery
Adult/Pediatric
Pediatric
Office Fax
650-497-8891
Contact Phone
844-416-7846
Website Address
http://www.stanfordchildrens.org/en/service/orthopedic?
730 Welch Rd 1st Fl
Palo Alto, California 94304

Steven P. Ringel, MD, FAAN

Steven P. Ringel, MD, FAAN
Category
Steven P. Ringel, MD, FAAN
Specialty
Neurology
Institution
University of Colorado Health Sciences Center
Department
Neurology
Contact Phone
720-848-2080
Website Address
http://uchealth.org
1635 Aurora Ct
Aurora, Colorado 80262

Steven S. Scherer, MD, PhD

Steven S. Scherer, MD, PhD
Category
Steven S. Scherer, MD, PhD
Specialty
Neurology
Institution
University of Pennsylvania Medical Center
Department
Neurology
Office Fax
215-573-3029
Contact Phone
215-349-5313
Website Address
www.pennmedicine.org/hospital-university-pennsylvania/visitor-information/
3400 Spruce St
Philadelphia, Pennsylvania 19014

Susan Syron

Susan Syron
Category
Susan Syron
Specialty
Physical Therapy
Sub-Specialty
Pediatric
Institution
Children's Therapy Center
Contact Phone
703-569-7500
Website Address
https://www.pediatric-therapy.com/
6225 Brandon Ave Ste 130
Springfield, Virginia 22150

Susan T. Iannaccaone, MD, FAAN

Susan T. Iannaccaone, MD, FAAN
Category
Susan T. Iannaccaone, MD, FAAN
Specialty
Neurology
Sub-Specialty
Pediatric
Institution
Children's Medical Center
Department
Pediatric Neurology
Office Fax
713-798-5073
Contact Phone
214-456-2768
2350 N Stemmons Fwy # F5400
Dallas, Texas 75207

Syracuse, NY CMTA Branch

Syracuse, NY CMTA Branch
Category
Syracuse, NY CMTA Branch
100 Trolley Barn Ln
North Syracuse, New York 13212
The Northern Onondaga Public Library
Michael Casey

T. Scott Woll, MD

T. Scott Woll, MD
Category
T. Scott Woll, MD
Sub-Specialty
Foot and Ankle
Institution
Rebound Orthopedics
Office Fax
360-254-6161
Contact Phone
360-254-6161
Website Address
https://www.reboundmd.com/doctors/t-scott-woll-md?Neurosurgery=
200 NE Mother Joseph Pl Ste 110
Vancouver, Washington 98664

Tahseen Mozaffar, MD

Tahseen Mozaffar, MD
Category
Tahseen Mozaffar, MD
Specialty
Neurology
Institution
UC Irvine MDA ALS Neuromuscular Clinic
Department
Neurology
Office Fax
714-456-5997
Contact Phone
714-456-2332
Website Address
https://www.ucihealth.org/find-a-doctor/m/tahseen-mozaffar
200 S Manchester Ave Ste 110
Orange, California 92868

Tampa Bay Area, FL CMTA Branch

Tampa Bay Area, FL CMTA Branch
Category
Tampa Bay Area, FL CMTA Branch
9951 Balm Riverview Rd.
Riverview, Florida 33569
Riverview Public Library
Ed Linde

Teepu Siddique, MD, FAAN

Teepu Siddique, MD, FAAN
Category
Teepu Siddique, MD, FAAN
Specialty
Neurology
Sub-Specialty
Neuromuscular Medicine
Institution
Northwestern University School of Medicine
Department
Neurology
Contact Phone
312-695-7950
Lavin Family Pavilion
259 E Erie St
Chicago, Illinois 60611

The CMT Center of Excellence and Neuromuscular Program at the Children’s Hospital of Philadelphia

The CMT Center of Excellence and Neuromuscular Program at the Children’s Hospital of Philadelphia
Category
The CMT Center of Excellence and Neuromuscular Program at the Children’s Hospital of Philadelphia
Clinical Director(s)
Sabrina Yum, MD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Physiatry
Contact Person
Hannah Borger (clinic coordinator)
Contact Phone
215-590-1719
Contact Email
Neuromuscular@email.chop.edu
Website Address
http://www.chop.edu/service/neuromuscular-program/home.html
Wood Building, 6th Fl
3401 Civic Center Blvd
Philadelphia, Pennsylvania 19014

The CMT Center of Excellence at the Perelman School of Medicine Hospital of the University of Pennsylvania

The CMT Center of Excellence at the Perelman School of Medicine Hospital of the University of Pennsylvania
Category
The CMT Center of Excellence at the Perelman School of Medicine Hospital of the University of Pennsylvania
Clinical Director(s)
Steven Scherer, MD, PhD and Chafic Karam, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Physical Therapy
Contact Person
Shana Millner
Contact Phone
215-662-3606
Contact Email
Shana.Millner@pennmedicine.upenn.edu
Website Address
http://www.pennmedicine.org/neuro/services/neuromusc.html
Perelman Center for Advanced Medicine, South Pavilion, 2nd Fl
3400 Civic Center Blvd
Philadelphia, Pennsylvania 19014

The Johns Hopkins CMT Center

The Johns Hopkins CMT Center
Category
The Johns Hopkins CMT Center
Institution
The Johns Hopkins CMT Center
Clinical Director(s)
Charlotte Sumner, MD and Bipasha Mukherjee-Clavin, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
EMG/Nerve Conduction Studies, Neurology, Occupational Therapy, Orthotics/Prosthetics, Pediatrics, Physical Therapy, Clinical Research
Services Provided by Referral/Appointment
Genetic Counseling, Pulmonology
Contact Person
Theresa Cox
Contact Phone
(Adult) 410-614-1196; (Pediatric) 410-955-4259
Contact Email
thutson2@jhmi.edu
Website Address
http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/cmt/team/
601 North Caroline Street
5th floor
Baltimore, Maryland 21287

Thomas Crawford, MD

Thomas Crawford, MD
Category
Thomas Crawford, MD
Specialty
Neurology
Sub-Specialty
Pediatric
Institution
Johns Hopkins University & School of Medicine
Department
Pediatric Neurology
Office Fax
410-614-2297
Contact Phone
410-955-4259
Website Address
https://www.hopkinsmedicine.org/profiles/details/thomas-crawford
600 N Wolfe St
Baltimore, Maryland 21287

Thomas Houghtalen

Thomas Houghtalen
Category
Thomas Houghtalen
Specialty
Physical Therapy
Institution
Physical Therapy Associates of Schenectady
Office Fax
518-399-6864
Contact Phone
518-399-6861
42 Saratoga Rd
Scotia, New York 12302

Tony Amato, MD

Tony Amato, MD
Category
Tony Amato, MD
Specialty
Neurology
Institution
Brigham and Women's
Department
Neurology
Contact Phone
617-732-8046
Website Address
https://doctors.massgeneralbrigham.org/provider/Anthony+Arnold+Amato/254640
60 Fenwood Road
Boston, Massachusetts 92115

Tulsa, OK CMTA Branch

Tulsa, OK CMTA Branch
Category
Tulsa, OK CMTA Branch
Tulsa, Oklahoma
Lonna Henry
Kurt Connelly

Tyler Gonzalez, MD

Tyler Gonzalez, MD
Category
Tyler Gonzalez, MD
Specialty
Orthopedic Foot and Ankle Surgery
Institution
University of South Carolina/ Prisma Health
Clinical Director(s)
Dr. Tyler Gonzalez
Adult/Pediatric
Adult and Pediatric
Office Fax
803-296-9804
Contact Person
Tiffany Swygert
Contact Phone
803-296-9618
Contact Email
tyler.gonzalez@prismahealth.org
Website Address
Clinic Website
University of South Carolina/ Prisma Health
104 Saluda Pointe Dr.
Lexington, South Carolina 29072
In person and telehealth appointments available

UNC Neurology Clinic

UNC Neurology Clinic
Category
UNC Neurology Clinic
Department
UNC Neurology Clinic
Clinical Director(s)
Rebecca Traub, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Orthopedic Surgery, Physiatry, Physical Therapy, Podiatry
Contact Phone
984-974-4401
Website Address
https://www.med.unc.edu/neurology/
300 Meadowmont Circle, Suite 202
Chapel Hill, North Carolina 27515

University of California, San Francisco – Adult

University of California, San Francisco – Adult
Category
University of California, San Francisco – Adult
Institution
University of California, San Francisco
Clinical Director(s)
Mark Terrelonge, MD
Services Provided at Clinic
Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy, Podiatry
Contact Phone
415-353-2273
Website Address
Clinic Website
400 Parnassus Avenue
8th Floor
San Francisco, California 94143

University of California, San Francisco – Pediatric

University of California, San Francisco – Pediatric
Category
University of California, San Francisco – Pediatric
Clinical Director(s)
Alex Fay, MD, PhD
Adult/Pediatric
Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthopedic Surgery, Physiatry, Physical Therapy, Social Work/Counseling
Contact Phone
415-353-7596
Website Address
https://www.ucsfbenioffchildrens.org/conditions/charcot-marie-tooth_disease/
1825 4th St, 6th Fl Ste A
San Francisco, California 91458

University of Colorado

University of Colorado
Category
University of Colorado
Department
Department of Neurology
Clinical Director(s)
Vera Fridman, MD
Adult/Pediatric
Adult
Services Provided at Clinic
EMG/Nerve Conduction Studies, Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Physical Therapy, Pulmonology, Social Work/Counseling, Clinical Research
Contact Phone
720-848-2028
Website Address
https://medschool.cuanschutz.edu/neurology
Anschutz Outpatient Pavilion
1635 Aurora Ct Ste 4200
Aurora, Colorado 80045

University of Florida

University of Florida
Category
University of Florida
Clinical Director(s)
James Wymer, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Occupational Therapy, Orthotics/Prosthetics, Pain Management, Podiatry, Respiratory Therapy, Social Work/Counseling
Contact Phone
352-294-5400
Website Address
https://fixel.ufhealth.org/getting-care/als-neuromuscular-disorders/
Norman Fixel Institute for Neurological Diseases
3009 SW Williston Rd
Gainesville, Florida 32608

University of Illinois at Chicago

University of Illinois at Chicago
Category
University of Illinois at Chicago
Department
Department of Neurology
Clinical Director(s)
Charles K. Abrams, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Physical Therapy, Speech/Language Pathology, Social Work/Counseling
Services Provided by Referral/Appointment
Orthopedic Surgery, Physiatry, Podiatry
Contact Phone
312-996-4780
Website Address
https://hospital.uillinois.edu/primary-and-specialty-care/neurology-and-neurosurgery/neurological-conditions-we-treat/muscular-dystrophy
1801 W Taylor St Ste 4 E
Chicago, Illinois 60612

University of Iowa Hospitals & Clinics

University of Iowa Hospitals & Clinics
Category
University of Iowa Hospitals & Clinics
Clinical Director(s)
Michael E. Shy, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthopedic Surgery, Pediatrics, Physical Therapy
Contact Phone
319-384-6362
Contact Email
uicmtclinic@uiowa.edu
Website Address
https://uihc.org/charcot-marie-tooth-disease-cmt
Boyd Tower, 2nd Fl
200 Hawkins Dr
Iowa City, Iowa 52242

University of Louisville

University of Louisville
Category
University of Louisville
Clinical Director(s)
Zeng Y. Wang, MD, PhD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Social Work/Counseling
Services Provided by Referral/Appointment
Orthotics/Prosthetics, Physical Therapy, Podiatry
Contact Person
Albertine Fabi
Contact Phone
502-588-4800
Contact Email
abetine.fabi@uoflhealth.org
Website Address
https://uoflphysicians.com/service-specialty/neurology/
401 E Chestnut St Ste 510
Louisville, Kentucky 40202

University of Miami

University of Miami
Category
University of Miami
Clinical Director(s)
Mario Saporta, MD
Adult/Pediatric
Adult
Services Provided at Clinic
Genetic Counseling, Neurology, Orthotics/Prosthetics, Physical Therapy, Social Work/Counseling
Contact Phone
305-243-9173
Professional Arts Center
1150 NW 14th St, Ste 609
Miami, Florida 33136

University of Michigan

University of Michigan
Category
University of Michigan
Institution
University of Michigan
Clinical Director(s)
Gary Gallagher, MD and Brett McCray, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Neurology, Orthotics/Prosthetics, Physiatry
Contact Phone
734-936-9020
Website Address
https://www.uofmhealth.org/conditions-treatments/brain-neurological-conditions/adult-charcot-marie-tooth-cmt-clinic.
MDA and CMT Clinic
2850 South Industrial Highway
Suite 400
Ann Arbor, Michigan 48104

University of Minnesota Health Neurology Clinic

University of Minnesota Health Neurology Clinic
Category
University of Minnesota Health Neurology Clinic
Clinical Director(s)
David Walk, MD
Adult/Pediatric
Adult
Services Provided at Clinic
EMG/Nerve Conduction Studies, Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Nutrition, Physiatry, Podiatry, Social Work/Counseling
Contact Phone
763-898-1000
Contact Email
mdiaz3@fairview.org
Neurology Clinic at Fairview Maple Grove Medical Center
14500 99th Ave N
Maple Grove, Minnesota 55369

University of Mississippi Medical Center

University of Mississippi Medical Center
Category
University of Mississippi Medical Center
Department
Children's Genetics
Contact Phone
601-984-1900
Website Address
https://www.umc.edu/Childrens/ChildrensMedicalGenetics/Childrens-Medical-Genetics.html
2500 N State St
Jackson, Mississippi 39216

University of Missouri

University of Missouri
Category
University of Missouri
Department
Department of Neurology
Clinical Director(s)
Dr. Vovanti Jones
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Occupational Therapy, Orthotics/Prosthetics, Orthopedic Surgery, Physiatry
Contact Phone
573-882-1515
Website Address
https://www.muhealth.org/conditions-treatments/neurosciences/neurology
1020 Hitt St
Columbia, Missouri 65212

University of Rochester Peripheral Neuropathy/CMT Clinic

University of Rochester Peripheral Neuropathy/CMT Clinic
Category
University of Rochester Peripheral Neuropathy/CMT Clinic
Clinical Director(s)
David Herrmann, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Orthopedic Surgery, Physical Therapy
Services Provided by Referral/Appointment
Social Work/Counseling
Contact Phone
585-275-2559
Contact Email
CMT_Studies@urmc.rochester.edu
Website Address
https://www.urmc.rochester.edu/neurology/clinical-services/charcot-marie-tooth-clinic.aspx
601 Elmwood Ave
Box 673
Rochester, New York 14642
Notes
Request for genetic counseling must be made prior to visit. Orthotics/prosthetics not at clinic; separate appointment is required.

University of Utah

University of Utah
Category
University of Utah
Clinical Director(s)
Russell Butterfield, MD, PhD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
Genetic Counseling, Neurology, Nutrition, Occupational Therapy, Orthotics/Prosthetics, Physiatry, Pulmonology, Respiratory Therapy
Contact Phone
801-585-7575
Website Address
http://healthcare.utah.edu/neurosciences/neurology/neuromuscular_disorders.php
175 N Medical Dr East
Salt Lake City, Utah 84132

Vera Fridman, MD

Vera Fridman, MD
Category
Vera Fridman, MD
Specialty
Neurology
Institution
University of Colorado Hospital
Department
Neurology
Office Fax
720-848-2106
Contact Phone
303-724-2188
Website Address
http://www.ucdenver.edu/academics/colleges/medicalschool/departments/neurology/Faculty/Pages/Vera.aspx
Anschutz Outpatient Pavilion
1635 Aurora Ct Ste 4200
Aurora, Massachusetts 80045

Victoria Lawson, MD

Victoria Lawson, MD
Category
Victoria Lawson, MD
Specialty
Neurology
Institution
Dartmouth-Hitchcock Medical Center
Department
Neurology
Office Fax
603-650-6233
Contact Phone
603-650-8589
One Medical Center Dr
Lebanon, New Hampshire 03756

Virginia E. Kimonis, MD

Virginia E. Kimonis, MD
Category
Virginia E. Kimonis, MD
Institution
UCI Medical Center
Department
Pediatrics
Office Fax
714-456-5330
Contact Phone
714-456-5791
101 The City Dr S
ZC 4482
Orange, California 92868

Wasatch Front, UT CMTA Branch

Wasatch Front, UT CMTA Branch
Category
Wasatch Front, UT CMTA Branch
1369 W 1250 S
Orem, Utah 84058
Melissa Arakaki

Washington University School of Medicine, St. Louis

Washington University School of Medicine, St. Louis
Category
Washington University School of Medicine, St. Louis
Clinical Director(s)
Stefanie Geisler, MD
Adult/Pediatric
Adult and Pediatric
Services Provided at Clinic
EMG/Nerve Conduction Studies, Neurology, Orthotics/Prosthetics, Physical Therapy, Social Work/Counseling
Contact Phone
314-362-6981
Website Address
https://neuromuscular.wustl.edu/
660 S Euclid Ave
St. Louis, Missouri 63110

Washington, DC Metro CMTA Branch

Washington, DC Metro CMTA Branch
Category
Washington, DC Metro CMTA Branch
Maryland
Virtual Meetings and In Person Meetings - All are welcome
Steve Weiss

Westchester, NY CMTA Branch

Westchester, NY CMTA Branch
Category
Westchester, NY CMTA Branch
95 Bradhurst Ave
Valhalla, New York 10595
Blythedale Children's Hospital
Beverly Wurzel

William Bryan Burnette, MD

William Bryan Burnette, MD
Category
William Bryan Burnette, MD
Specialty
Neurology
Sub-Specialty
Pediatric
Institution
Vanderbilt Childrens Neurology
Department
Pediatric Neurology
Contact Phone
615-936-5536
Website Address
https://search.vanderbilthealth.com/doctors/burnette-william
2200 Childrens Way 9th Floor
Nashville, Tennessee 37232
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