CMTA-STAR Alliance Partner NMD Pharma Announces FDA Orphan Drug Designation for NMD670
…SYNAPSE-CMT Phase 2 clinical trial, which began in November 2024. This study is investigating the effects of NMD670 for 80 adult patients with genetically confirmed CMT1 or CMT2 subtypes across…
CMTA’s CRISPR Research Initiative Advances for CMT1A and CMT1B
…CMTA’s Chief Research Officer, Katherine Forsey, PhD, highlighted the transformative potential of this work: “This CMTA-STAR research project could redefine how we approach the treatment of CMT1A and CMT1B, offering…
CMTA-STAR Alliance Partner NMD Pharma Publishes Transformative Study on Charcot-Marie-Tooth Disease
…with CMT. Registering lets you stay informed about the latest research opportunities, including the SYNAPSE-CMT trial, and other CMT research participation opportunities. Together, we accelerate the research that brings us…
Bailey’s Beat the Bite 5k CMT Walk
03/29/2025 @ 9:00 am – 12:00 pm – Whether you walk, run or roll, we invite you to join us at the 2025 Bailey’s Beat the Bite 5k CMT Walk for a nice and enjoyable day. Come out and connect with other people with Charcot-Marie-Tooth (CMT), families, and local companies while fundraising for a cure. Fun for all the whole family! About Walk […]
School Supports for Children with CMT: 504 Plans and IEPs
…all staring and waiting. And then there was me with CMT, desperately trying to stay upright on my pounding feet and shaking legs, hoping that my teacher would lose count…
CMTA Youth Council
…hardware design, and woodworking. Read more Joseph Joseph has CMTX. He got involved with CMTA through Camp Footprint in Pennsylvania. He was recommended to CMTA by his friend, Toby, who…
2017_Summer_CMTA_Report
…CMTA REPORT 3 DEAR CMTA FRIENDS: I firmly believe there couldn’t be a more exciting time to become the chief executive officer of the Charcot-Marie-Tooth Association (CMTA). The CMTA has…
CMTAreportSpring2023spreads
…the CMTA at info@cmtausa.org 26 THE CMTA REPORT SPRING 2023 27SPRING 2023 THE CMTA REPORT P.O. Box 105 Glenolden, PA 19036 1-800-606-CMTA (2682) FAX (610) 499-9267 cmtausa.org NON-PROFIT ORG. U.S….
CMTA Appoints David Apple to Board of Directors
…to better understand potential treatments and cures for CMT. The CMTA is the leading patient advocacy organization driving CMT research. Its mission is to develop treatments and a cure for…
2020_CMTA_PFC_Demyelinating_Update_transcript
…to get involved with the CMTA. And to be honest, it was depressing to look at the CMT world, because there were some great researchers working on CMT, but there…