Pharnext Announces Disappointing Results for CMT1A Drug Trial PXT-3003
…the data in collaboration with potential partners for licensing or acquisition of PXT-3003. The CMTA would particularly like to thank the members of the CMT community for taking part in…
CMTeen Dolphin Outing in PEOPLE Online
Dolphin lover and CMTeen Maddie Leard is helping the CMTA raise money for CMT research. The Charcot-Marie-Tooth Association is in the pages of PEOPLE online once again, with a story…
How Balance Walking Can Help Fitness and Living with CMT
…walking stance Balance Walking poles can help people with CMT get fit, while aiding with regular walking and overall balance. As podiatrist and CMTA Advisory Board member Joseph Gregory Stilwell,…
Exploring New Therapeutic Pathways for CMT1B: UPR Activation
…improve the symptoms of CMT1B. Dr. D’Antonio and his colleagues tested various compounds in CMT1B models to determine whether these could effectively activate the UPR pathways. The initial results are…
Three Major Patient Advocacy Groups Focused on CMT Research Collaborating on FDA “Voice of the Patient” Report
This CMT Awareness Month, the Charcot-Marie-Tooth Association (CMTA) is proud to join the Muscular Dystrophy Association (MDA) as a sponsor of the Hereditary Neuropathy Foundation (HNF) who will be hosting…
The CMTA Announces the Funding of a New Research Study for CMT2A
…CMT. Her father and mother, JD and Brenda Griffith, made a donation in Marah’s honor to the CMTA through the CMT Foundation to fund this important clinical research study. For…
State College, PA CMTA Branch Meeting (Virtual) with Guest Speaker
06/26/2023 @ 7:00 pm – 8:00 pm – Please join us (via Zoom) for the State College, PA CMTA Branch meeting Monday, June 26th at 7:00 pm EST. We will gather virtually to welcome guest speaker, Elizabeth Ouellette from the CMTA Board of Directors. She will share with us information on “CMT and Emotional Wellness.” Elizabeth Ouellette has been with the CMTA for […]
Manitowoc, WI Cycle4CMT
09/16/2023 @ 9:00 am – 12:00 pm – Join us at the Manitowoc, Wisconsin Cycle4CMT Cycle4CMT is a volunteer-led national fundraising campaign for the CMTA. By participating in this year-round campaign, you will be joining thousands of others across the country who want to improve the lives of those living with CMT. Funds raised by the Cycle4CMT campaign fuel the CMTA’s mission to […]
CMTA Adds Drug Development Expert Martine Garnier to STAR Advisory Board
…CMT patients.” CMT is a progressive disorder of the peripheral nerves that causes people to lose the normal use of their feet and legs. Symptoms include foot deformity (very high…
Genetics and Inheritance
Inheritance Patterns and CMT Knowing which of the forms of CMT you have is important so that you can understand the implications for passing the disease on to your children….