Let’s Move!
…committed to empowering people with CMT by providing up-to-date educational material. Please refer to the CMTA website (https://www.cmtausa.org/living-with-cmt/managing-cmt/exercise) for additional articles, tips, and videos on exercise prepared by other members…
CMTA-INC Strategic Alliance Announces the 2025 Inherited Neuropathy Fellowship
The Charcot-Marie-Tooth Association (CMTA), through its strategic alliance with the Inherited Neuropathy Consortium (INC), is proud to announce the 2025 Inherited Neuropathy Fellowship. This one-year fellowship highlights how the CMTA-INC…
Progress Update: Timmerman’s CMT1A Organoid Project Shows Early Success
CMTA is excited to report significant progress in its strategic CMTA-STAR investment of over $200,000 towards developing a human-derived organoid model for CMT1A. This pioneering research led by Professor Vincent…
Manitowoc, WI Cycle4CMT
09/14/2024 @ 10:00 am – 1:00 pm – Join us at the Manitowoc, Wisconsin Walk ‘n Roll 4 CMT About the Manitowoc, Wisconsin Cycle4CMT Ride Location: The Lighthouse Inn, 1515 Memorial Drive, Two Rivers, Wisconsin. All will meet in the Lighthouse Inn parking lot adjacent to the trail. We will walk-n-roll on the paved Mariners Trail from Two Rivers south to Manitowoc and […]
ToolGen CMT1A Treatment Receives Orphan Drug Designation
…central part of the CMTA’s strategy to accelerate treatments for the CMT community. We congratulate ToolGen on receiving Orphan Drug Designation for its CMT1A treatment candidate and will continue to…
CMTA Lunch & Learn: CMT 1A-focused Patients as Partners in Research Town Hall
09/20/2023 @ 12:00 pm – 1:00 pm – Please join us on September 20th at 12:00 p.m. Eastern Time for our next Lunch & Learn education meeting when we will welcome guest speakers John Svaren and Gilles Bouchard. Dr. Svaren and Gilles will be sharing a CMT 1A STAR research update to include the following: the latest information about DTx-1252, the potential life-changing […]
CMTEEN_Volume1_Issue 2_DT
…him, all the money goes towards CMT research. You can make donations at https://www.justgiving.com/Charlie-Stan- ton-Stock1. Paratriathlete… CMT is di�erent for everybody. But I found a treatment that works for me….
Lambertville, NJ Cycle4CMT
09/24/2023 @ 8:00 am – 1:00 pm – What’s better than riding your bike in a tropical cyclone? Riding your bike when it is nice and safe! Typically, our events are rain or shine but, in this case, sadly, we must cancel. Your well-being is too important to us so the Lambertville, NJ Cycle4CMT has just gone virtual. When the sky has cleared, […]
CMTA Hails Novartis Acquisition of DTx Pharma And Its CMT1A Therapeutic Program
…Chief Research Officer Katherine Forsey, PhD, the acquisition highlights the progress made in positioning CMT as an attractive proposition to pharma, the founding principle of the CMTA’s Strategy to Accelerate…
A New Therapeutic Strategy for CMT2D
Sleigh & Schiavo Laboratories Scientists at the UCL Queen Square Institute of Neurology in London have identified a new potential therapeutic strategy for CMT type 2D (CMT2D) that may be…