Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
CMT_How_Not_to_Miss_It
CONTACT info@cmtausa.org CMTA WEBSITE www.cmtausa.org CMTA FACEBOOK PAGE www.CMTAssociation.com CMTA YOUTUBE CHANNEL www.youtube.com/user/CMTAssociation CONNECT WITH THE CMTA ON TWITTER twitter@cmtastar CMTA resources CMTA Clinical Centers of Excellence One of the…
2020_STAR_Agenda_Demyelinating_CMT
…• info@cmtausa.org We’ve deliberately kept our descriptions simple, but if you’d like to go deeper on any project or type, email Jeana Sweeney at jeana@cmtausa.org. Donate at cmtausa.org/inspire https://www.cmtausa.org https://www.cmtausa.org/inspire…
Community Partnership Opportunities
…CMT community. Where do you shop for your CMT-related needs? What service providers do you use for your CMT-related needs? Who would other CMT patients use? Sponsor Prospecting Start a…
Shelbi Ritter: “Trust your gut!”
…for Shelbi’s needs. CMT1E is a rare form of CMT, accounting for approximately one percent of people with genetically confirmed CMT. Children often show symptoms within the first two years…
CMT_Guide_for_Schools
…familiar with how CMT can affect a child’s school experience. h Being aware of CMT and its effects can help teachers and parents support the child’s school involvement, making it…
Aetrex Worldwide, Inc.
…on two critical areas: the delivery of comfortable, well-designed shoe solutions to people with CMT and the creation of awareness about CMT and the CMTA to the public and the…
Lia O’Sullivan: “I’m ok!”
…made easier by several fortunate events: The first was finding the Bay Area CMTA Branch, then led by Elizabeth Ouellette. Along with Lia, we met many others with CMT, and…
New Gene Therapy, Type 1/Type 4 Research Projects Approved
…the case of CMT1A, the strategy going forward will ultimately be to silence the responsible gene that is overactive in Schwann cells. For loss-of-function CMT types including CMT1X and CMT4,…
Managing Neuropathic Pain
Does CMT cause pain? Patients with CMT often have pain. Pain can be related to nerve injury, but other causes of pain include musculoskeletal causes such as joint injury. About…
James Cuizon, Ironman
…online and found the CMTAthletes website (now at www.facebook.com/groups/cmtathletes). He was amazed to learn that people with CMT were competing in full-distance Ironman triathlons. He decided that if they could…