Help for Parents

…kids who have CMT, join our CMTA Youth Group on Facebook. The Youth Group is moderated and maintained by CMTA staff members. CMTA holds CMTA Patient & Research Summits nationwide…

October 2023 Community Statement from Novartis

“The CMTA welcomes this community update from Novartis and applauds its leading role in the development of treatments for CMT. The CMTA has been maintaining regular contact, providing support and…

About the Charcot-Marie-Tooth Association

Who is the Charcot-Marie-Tooth Association (CMTA) and What Does CMTA Do? The Charcot-Marie-Tooth Association is the largest philanthropic funder of Charcot-Marie-Tooth disease (CMT) research globally. At the heart of our…

Community Partnership Opportunities

…CMT community. Where do you shop for your CMT-related needs? What service providers do you use for your CMT-related needs? Who would other CMT patients use? Sponsor Prospecting Start a…

Volunteer

…in the CMT community? Become a volunteer host for a Walk 4 CMT or Cycle 4 CMT event and help raise awareness and funds to advance research and support for…

Aetrex Worldwide, Inc.

…on two critical areas: the delivery of comfortable, well-designed shoe solutions to people with CMT and the creation of awareness about CMT and the CMTA to the public and the…

Shelbi Ritter: “Trust your gut!”

…for Shelbi’s needs. CMT1E is a rare form of CMT, accounting for approximately one percent of people with genetically confirmed CMT. Children often show symptoms within the first two years…

James Cuizon, Ironman

…online and found the CMTAthletes website (now at www.facebook.com/groups/cmtathletes). He was amazed to learn that people with CMT were competing in full-distance Ironman triathlons. He decided that if they could…

Managing Neuropathic Pain

Does CMT cause pain? Patients with CMT often have pain. Pain can be related to nerve injury, but other causes of pain include musculoskeletal causes such as joint injury. About…

Lia O’Sullivan: “I’m ok!”

…made easier by several fortunate events: The first was finding the Bay Area CMTA Branch, then led by Elizabeth Ouellette. Along with Lia, we met many others with CMT, and…