Who Inspires You to Give?
Like many parents of children living with CMT, Tracy supports the CMTA because of the support and services they provide as her family navigates the complexities of the disease that…
Participants Needed for SORD Clinical Trial
…recessive CMT2. The new form of CMT (sometimes diagnosed as distal hereditary motor neuropathy) is caused by the SORD gene and appears to be the most common recessive CMT type….
Physical Therapy and Exercise: Getting the Right Dose
…my husband and two of our children have CMT. During our experiences with CMT, we have encountered many people, including physicians and patients, who are unclear as to the role…
Allard USA Orthotics & Braces
…committed relationship with Allard USA, the CMTA is grateful to provide opportunities to improve the quality of life for CMT patients across the country.” Studies have shown that early intervention…
Brochures & Guides
…CMT and Pain Management CMT-Associated Genes: The Definitive Guide CMT Guide for Schools My Child Has CMT CMT Survivor’s Guide What Is CMT? Card CMT Respiratory Impairment: What it is…
STAR_Webinar_Transcript
…involved! https://www.cmtausa.org Treatment Driven. Community Powered. Questions? Patient Registry https://www.rarediseasesnetwork.org/registry Clinical Trials https://clinicaltrials.gov CMTA https://www.cmtausa.org Annual Appeal – $150k match! www.cmtausa.org/35years Sign-up for e-news www.cmtausa.org/enews Follow us on Facebook www.facebook.com/CMTAssociation…
Chelsea Singer, Yoga Instructor
…until the age of 11, when her mother underwent foot surgery for her own CMT. Chelsea’s struggles with CMT were compounded by watching her mother succumb to a pain pill…
How to Decide If Foot Surgery Is Right for You
Estrategia para Avanzar en Estudios Científicos
…contacto para pacientes de CMT (CMT Registry). El Enfoque 1. Identificar los mejore investigadores del mundo para desarrollar y ejecutar los planes de acuerdo a esta estrategia. 2. Medir el…
Initiation of Registrational Phase 2/3 Study of AT-007 in SORD Deficiency
…CMT-FOM domain sub-scales, CMT Health Index (CMT-HI) patient reported outcomes, fatigue assessment and muscle MRI. “The INSPIRE registrational trial in SORD Deficiency represents an important milestone for patients and is…