Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
Committee Resources
Committee Resources Our walk campaign brings local CMT communities together to work towards one common goal – raising money to find a cure for CMT. If you can create a…
Allard USA Orthotics & Braces
…committed relationship with Allard USA, the CMTA is grateful to provide opportunities to improve the quality of life for CMT patients across the country.” Studies have shown that early intervention…
STAR_Webinar_Transcript
…involved! https://www.cmtausa.org Treatment Driven. Community Powered. Questions? Patient Registry https://www.rarediseasesnetwork.org/registry Clinical Trials https://clinicaltrials.gov CMTA https://www.cmtausa.org Annual Appeal – $150k match! www.cmtausa.org/35years Sign-up for e-news www.cmtausa.org/enews Follow us on Facebook www.facebook.com/CMTAssociation…
A First-Time Walk Leader Shares Her Experience
“My First Walk”: An Interview with Jess Diamond What inspired you to start a Walk 4 CMT? This year was my very first time hosting a Walk 4 CMT. I’d…
Initiation of Registrational Phase 2/3 Study of AT-007 in SORD Deficiency
…CMT-FOM domain sub-scales, CMT Health Index (CMT-HI) patient reported outcomes, fatigue assessment and muscle MRI. “The INSPIRE registrational trial in SORD Deficiency represents an important milestone for patients and is…
Estrategia para Avanzar en Estudios Científicos
…contacto para pacientes de CMT (CMT Registry). El Enfoque 1. Identificar los mejore investigadores del mundo para desarrollar y ejecutar los planes de acuerdo a esta estrategia. 2. Medir el…
How to Decide If Foot Surgery Is Right for You
New Mobile App Simplifies Sign-Up for Patient Registry
…Current open studies include: 6601: Natural History Evaluation of Charcot Marie Tooth Disease 6602: Genetics of CMT– Modifiers of CMT1A, New Causes of CMT2 6603: Development of CMT Peds Scale…
Chelsea Singer, Yoga Instructor
…until the age of 11, when her mother underwent foot surgery for her own CMT. Chelsea’s struggles with CMT were compounded by watching her mother succumb to a pain pill…
New Law Makes Flying Easier for People Living With Charcot-Marie-Tooth Disease
…for the CMT community. CMTA remains committed to continue working to create a world where air travel is easier and safer for all who have CMT. Published: May 16, 2024…