Surgery
…should always weigh the realistic potential benefits against the problems posed by surgery. CMTA Patient Support Fund The CMTA has put together a fund to support CMT patients being evaluated…
Brochures & Guides
…What Is CMT? Brochure Consensus Statement on Surgery for CMT Genetics of CMT LER Orthotic Management CMT A Guide to Physical and Occupational Therapy for CMT CMTA College Guide Book…
Allard USA Orthotics & Braces
…committed relationship with Allard USA, the CMTA is grateful to provide opportunities to improve the quality of life for CMT patients across the country.” Studies have shown that early intervention…
STAR_Webinar_Transcript
…involved! https://www.cmtausa.org Treatment Driven. Community Powered. Questions? Patient Registry https://www.rarediseasesnetwork.org/registry Clinical Trials https://clinicaltrials.gov CMTA https://www.cmtausa.org Annual Appeal – $150k match! www.cmtausa.org/35years Sign-up for e-news www.cmtausa.org/enews Follow us on Facebook www.facebook.com/CMTAssociation…
Chelsea Singer, Yoga Instructor
…until the age of 11, when her mother underwent foot surgery for her own CMT. Chelsea’s struggles with CMT were compounded by watching her mother succumb to a pain pill…
New Mobile App Simplifies Sign-Up for Patient Registry
…Current open studies include: 6601: Natural History Evaluation of Charcot Marie Tooth Disease 6602: Genetics of CMT– Modifiers of CMT1A, New Causes of CMT2 6603: Development of CMT Peds Scale…
Estrategia para Avanzar en Estudios Científicos
…contacto para pacientes de CMT (CMT Registry). El Enfoque 1. Identificar los mejore investigadores del mundo para desarrollar y ejecutar los planes de acuerdo a esta estrategia. 2. Medir el…
A First-Time Walk Leader Shares Her Experience
“My First Walk”: An Interview with Jess Diamond What inspired you to start a Walk 4 CMT? This year was my very first time hosting a Walk 4 CMT. I’d…
Initiation of Registrational Phase 2/3 Study of AT-007 in SORD Deficiency
…CMT-FOM domain sub-scales, CMT Health Index (CMT-HI) patient reported outcomes, fatigue assessment and muscle MRI. “The INSPIRE registrational trial in SORD Deficiency represents an important milestone for patients and is…
New Law Makes Flying Easier for People Living With Charcot-Marie-Tooth Disease
…for the CMT community. CMTA remains committed to continue working to create a world where air travel is easier and safer for all who have CMT. Published: May 16, 2024…