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2019_Winter_CMTA_Report
…Events Manager, andi@cmtausa.org Frank Gaidjunas Director of Marketing and Communications, frank@cmtausa.org Leslie Nagel Marketing Coordinator, leslie@cmtausa.org Kim Magee Director of Finance and Administration, kim@cmtausa.org Laurel Richardson Director of Community Outreach,…
CMTAfall2022web
…risks of not achieving expected outcomes or lacking the statistical power to obtain meaningful results. Ongoing biomarker studies funded by the CMTA (for CMT1B, CMT1X, CMT2A, and CMT2F) depend on…
CMTAfall2022web
…risks of not achieving expected outcomes or lacking the statistical power to obtain meaningful results. Ongoing biomarker studies funded by the CMTA (for CMT1B, CMT1X, CMT2A, and CMT2F) depend on…
Gene Replacement Therapy in CMT4 Subtypes
…using a model replicating CMT4A. If successful, this approach could serve as a template for treating other types of CMT, such as CMT4B1 and CMT4D. “Recent advances in developing desirable…
CMTA Updates List of Neurotoxic Meds Potentially More Hazardous to CMT Patients
…Systematic Review. J Peripher Nerv Syst. 2023 May 30. doi: 10.1111/jns.12566. Epub ahead of print. PMID: 37249082. About the CMTA The CMTA is the leading patient advocacy organization driving CMT…
2019_Summer_CMTA_Report
…laurel@cmtausa.org Jeana Sweeney Director of Development, jeana@cmtausa.org INSIDE THIS ISSUE RESEARCH CMT4C—Gene Therapy …………………………………………………………………………6 Wearable Biomarkers …………………………………………………………………………..6 CMT COMMUNITY The Doctors of the CMTA ……………………………………………………………………….8 Why We Give…………………………………………………………………………………..14 FUN AND…
2019_Summer_CMTA_Report
…laurel@cmtausa.org Jeana Sweeney Director of Development, jeana@cmtausa.org INSIDE THIS ISSUE RESEARCH CMT4C—Gene Therapy …………………………………………………………………………6 Wearable Biomarkers …………………………………………………………………………..6 CMT COMMUNITY The Doctors of the CMTA ……………………………………………………………………….8 Why We Give…………………………………………………………………………………..14 FUN AND…
Type 1 CMT Gene Therapy Project Now Underway
…their behalf. To learn more about the CMTA, please visit www.cmtausa.org. Media contacts: Mary Fiance Director, Public Relations and Communications, MDA (646) 992-2908 mfiance@mdausa.org Marcia Semmes Media Relations, CMTA marcia@cmtausa.org…
Type 1 CMT Gene Therapy Project Now Underway
…their behalf. To learn more about the CMTA, please visit www.cmtausa.org. Media contacts: Mary Fiance Director, Public Relations and Communications, MDA (646) 992-2908 mfiance@mdausa.org Marcia Semmes Media Relations, CMTA marcia@cmtausa.org…
CMT1X Research
…therapy for not only CMT1X but also other demyelinating forms of CMT (CMT1A and CMT4C). The CMTA convened a workshop with some of the world’s top gene therapy experts to…