Voice_of_the_Patient_Report_8-19-2019
…health o Many patients use complementary methods such as exercise, swimming, acupuncture, meditation, and massage o Patients are very creative in finding adaptations to help with their daily lives and…
How Balance Walking Can Help Fitness and Living with CMT
…through pain, motivating you to exercise through discomfort. Other advantages of adding poles include: Reduced impact on your joints and feet Helping to prevent lower body issues due to foot…
RESEARCH TRIANGLE, NORTH CAROLINA CMTA BRANCH (IN PERSON) WITH GUEST SPEAKER
05/06/2023 @ 10:30 am – 12:30 pm – Please join us (in person) for the Raleigh, NC ( RTP) CMTA Branch meeting on Saturday, May 6th at 10:30 am Eastern Time. Our meeting will be held at Carolina Meadows Retirement Community, in the Board Room. The address is 100 Whippoorwill Lane, Chapel Hill, NC 27517. During our meeting, we will have a discussion on […]
Hereditary Neuropathy with Liability to Pressure Palsies
…activities should be tailored for individuals to have adequate exercise without triggering nerve symptoms. Pain control Many patients with HNPP complain of pain, regardless if focal symptoms are present or…
The 2020 Winter CMTA Report
Download as PDF Read as HTML Flipbook Be the Change: From attitude to exercise to research, in 2020 our CMTA family is committed to being the change we want to…
$1 Million Gift Pledged to CMT Type 2 Research!
…their young son, who does not have CMT. John is very “self-adapting,” with a full exercise regimen of swimming and working out with a trainer. He is also very active,…
Understanding Charcot-Marie-Tooth Disease in Children
…my son, this included knowing when orthotics in shoes might help his walking, when nights splits would help to maintain flexibility while he is growing, along with physiotherapy and exercise…
The Adventures of Archy
…and enjoy the feeling. While I was doing that, he recommended that I use some squeezing and stretching exercises to keep my toes (fingers) supple. He also wrote out a…
Help for Parents
…who has only recently been diagnosed, while others reach out with questions about school or exercise. Some are just seeking a little support. Wherever you are in your journey, we…
Managing Neuropathic Pain
…exercise. Cognitive behavioral therapy is the best studied of these treatments. Similar to topicals, side effects are much less of an issue than for oral medications. Downsides include finding a…