Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
Hereditary Neuropathy with Liability to Pressure Palsies
…activities should be tailored for individuals to have adequate exercise without triggering nerve symptoms. Pain control Many patients with HNPP complain of pain, regardless if focal symptoms are present or…
How Balance Walking Can Help Fitness and Living with CMT
…through pain, motivating you to exercise through discomfort. Other advantages of adding poles include: Reduced impact on your joints and feet Helping to prevent lower body issues due to foot…
Charcot–Marie–Tooth Disease and Breathing Problems
…strength to handle respiratory demand on their own. What is Dyspnea on Exertion? Dyspnea (disp-nee-uh) on exertion is shortness-of-breathe when doing anything physically demanding such as vigorous exercise and is…
JACKSONVILLE, FL CMTA BRANCH MEETING (IN-PERSON) WITH GUEST SPEAKER
06/17/2023 @ 9:00 am – 11:00 am – Please join us (in person) for the Jacksonville, FL CMTA Branch meeting on Saturday, June 17th at 9 am Eastern Time. We will meet at the Cannaday Building Room 1106. The address is 4500 San Pablo Rd S, Jacksonville, FL 32224. During our meeting, we will welcome guest speaker, Amanda Lazo, OT, OTD. Amanda is […]
James Cuizon, Ironman
…with CMT to engage in some form of exercise. In his words, “A fit body is the key to everything else. If you don’t feel healthy, you won’t perform at…
Anthony Zahn, Paralympian
…bronze medals at the world championships. But he no longer had the energy for the training required to compete at a world-class level. Anthony believes that while recreational exercise can…
Minneapolis, MN CMTA Branch Meeting (In-Person)
10/28/2023 @ 10:00 am – 11:30 am – Please join us (in person) for the Minneapolis, MN CMTA Branch meeting on Saturday, October 28th at 10:00 am Central Time. Our meeting will be held at The Penn Lake Library. The address is 8800 Penn Ave South, Bloomington, MN 55431. During our meeting, our very own branch member, Brianna Engebretsen, is going to discuss […]
Edmonton, AB, Canada CMTA Branch Meeting (Virtual) with Guest Speaker
12/02/2023 @ 12:00 pm – 1:00 pm – Please join us (via Zoom) for the next meeting of the Edmonton, AB, Canada CMTA Branch on Saturday, December 2nd at 12:00 pm MST. We will gather virtually for an Ugly Christmas sweater party with guest Julie Stone, creator of CMTdefy. Julie will host a virtual exercise session with us while listening to Christmas classics […]
Jacksonville, FL CMTA Branch Meeting (In-Person) with Guest Speaker
03/02/2024 @ 9:00 am – 11:00 am – Please join us (in person) for the Jacksonville, FL CMTA Branch meeting on Saturday, March 2nd at 9 am Eastern Time. We will meet at the Cannaday Building Room 1106. The address is 4500 San Pablo Rd S, Jacksonville, FL 32224. During our meeting, we will welcome guest speaker, Mackenzie Meyer, CPO, LPO. She graduated with BS in […]
CMTA Alliance Partner, NMD Pharma, Announces Encouraging Data with Implications for CMT
…implications for CMT. ClC-1 is a skeletal muscle specific chloride ion channel that plays important roles for regulating neuromuscular transmission and muscle fiber excitability during exercise. According to the company,…