Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
Exercise and Nutrition for Charcot-Marie-Tooth Disease (CMT)
…research and critical questions around dietary and supplemental needs. Learn how to safely implement nutritional management strategies without strict dietary protocols for improved health outcomes living with CMT. Managing CMT…
CMTA PITCHBOOK 6_singles
A COMMUNITY DRIVEN TO SUCCEED ACCELERATING RESEARCH EMPOWERING PATIENTS This gathering of patients, their families, clinicians and researchers became the Charcot-Marie-Tooth Association. In the years since then, the CMTA has…
Genes, Genetics and Genealogy: Three Roadmaps for CMT
…Accelerate Research (STAR). Could our genealogy tell us even more? My mother had researched genealogy for her and my father’s families for years, but she wasn’t looking for hereditary diseases….
The Fall 2020 CMTA Report
…issue is available now and full of information for you. Inside, we bring you coverage of CMT research projects with a special focus on CMT1A, stories and perspectives from people…
CMTA and Addex Announce CMT1A Collaboration
…of key outcomes. These outcome measures include biomarkers, motor function, electrophysiology and peripheral nerve histology. This is made possible through the CMTA’s preclinical testing alliance: www.cmtausa.org/our-research/for-researchers/cmta-preclinical-testing-network/ Download the full release…
Taysha Gene Therapies & CMTA Collaborate to Increase Genetic Testing Access for Giant Axonal Neuropathy (GAN)
…awareness,” said Suyash Prasad, MBBS, M.Sc., MRCP, MRCPCH, FFPM, Chief Medical Officer and Head of Research and Development of Taysha. “Early diagnosis can dramatically improve the lives of patients and…
Acceleron Announces Topline Results from the Phase 2 Trial of ACE-083 in Patients with Charcot-Marie-Tooth Disease
…and Chief Executive Officer of Acceleron. “We wish to thank all of the patients, families, caregivers, and investigators for their support and participation in this research. I also want to…
Hereditary Sensory Neuropathy (HSN)
…the DNMT1 gene. HSN1F HSN1F is due to the gene ATL3 on chromosome 11q12.3-q13.1. HSN Research Hereditary Sensory Neuropathy Serine trial (SENSE trial) See what’s happening in HSN research ⟶…
New Mexico CMTA Branch Meeting (Virtual)
02/08/2025 @ 10:00 am – 12:00 pm – Please join us (via Zoom) for the next meeting of the New Mexico CMTA Branch on Saturday, February 8th, at 10 am – Noon Mountain time, when we will gather virtually to watch and discuss the 2024 CMTA Patient and Research Summit. We will be watching the Physical/Occupational Therapy: Help for Today session, followed by […]
CMTA Funds Cutting-Edge Gene Editing Studies for Type 2 CMT
…technologies shows the remarkable progress in this field and the critical role that basic science research plays in the development of research tools and potential disease treatments. Editing the genomes…