Your legacy can help bring an end to CMT. Learn how a planned gift can make an impact for generations to come.
CMTA and Addex Announce CMT1A Collaboration
…of key outcomes. These outcome measures include biomarkers, motor function, electrophysiology and peripheral nerve histology. This is made possible through the CMTA’s preclinical testing alliance: www.cmtausa.org/our-research/for-researchers/cmta-preclinical-testing-network/ Download the full release…
Stanford Chronic Pain Study
Stanford Chronic Pain Study A Stanford research team needs feedback from patient advisors to make their five-year study welcoming for all patients living with chronic pain. They are gathering a…
Taysha Gene Therapies & CMTA Collaborate to Increase Genetic Testing Access for Giant Axonal Neuropathy (GAN)
…awareness,” said Suyash Prasad, MBBS, M.Sc., MRCP, MRCPCH, FFPM, Chief Medical Officer and Head of Research and Development of Taysha. “Early diagnosis can dramatically improve the lives of patients and…
Acceleron Announces Topline Results from the Phase 2 Trial of ACE-083 in Patients with Charcot-Marie-Tooth Disease
…and Chief Executive Officer of Acceleron. “We wish to thank all of the patients, families, caregivers, and investigators for their support and participation in this research. I also want to…
CMTA Funds Cutting-Edge Gene Editing Studies for Type 2 CMT
…technologies shows the remarkable progress in this field and the critical role that basic science research plays in the development of research tools and potential disease treatments. Editing the genomes…
The CMT&ME Study: What It’s Like to Live with CMT
There’s been little research to date into how CMT affects the lives of patients. The French company Pharnext, CMT scientific experts, and international patient advocacy organizations (PAOs) have therefore partnered…
Donate to CMTA
…(Strategy To Accelerate Research), we are accelerating groundbreaking discoveries to develop treatments and, ultimately, a cure for all types of CMT. Your donation directly fuels innovative research that addresses every…
The 2021 CMTA Annual Report
…our community outreach efforts invigorate and inform our research efforts, with the community providing the energy, excitement and funding for the research. You’ll read about all of it in the…
Genes, Genetics and Genealogy: Three Roadmaps for CMT
…Accelerate Research (STAR). Could our genealogy tell us even more? My mother had researched genealogy for her and my father’s families for years, but she wasn’t looking for hereditary diseases….
Understanding CMT4J: A Natural History Study
The purpose of this study is to observe and understand the progression of CMT4J over time. By tracking the natural course of the disease, researchers aim to discover how CMT4J…